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- Story shared with local media
- Walk for Hope organised
- Sandra and Bob Ruskin
- Susan and Stephen Whitefield
- Valerie's story
- PSPA Matters Audio
- PSPA Matters 2025 - Edition 1
- PSPA Matters 2025 – Edition 3
- PSPA Matters autumn 2021
- PSPA Matters Edition 1 2024
- PSPA Matters Edition 2 2025 - Audio Articles
- PSPA Matters Edition 3 2024
- PSPA Matters Edition 4 2024
- PSPA Matters summer 2021
- PSPA Matters Winter Edition 2022
- PSPA Matters, Edition 2 2023
- PSPA Matters, Edition 3 2023
- PSPA Matters, Edition 4 2023
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- Mary and John's story
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- UNDERSTOOD - What does it mean to you?
- Volunteering
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- How we keep growing the Leicestershire Support Group by Di, Edna, Roger and Susan
- Introducing Lavonne, PSPA Volunteer Coordinator
- Setting up a Facebook page for your Support Group
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- Education Volunteer
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- Support Group Helper
- Why Volunteer for PSPA?
- The difference volunteers make
- Why I volunteer for PSPA
- Befriending Volunteer - Sheila Bloice
- Education Volunteer - Christina Wigg
- Helpline Volunteer - Matilda Taylor
- Micro-volunteer - Rhia Key-Amirghiasvand
- New Volunteer - Nathalie Fyfe
- Support Group Coordinators - Linda I and Linda M
- Support Group Coordinators - Louisa and Sally
- Ten-year service for PSPA that netted £2 million
- Ten-year service for PSPA that netted £2 million - Bernard Petticrew
- Volunteer Local Group Coordinator - Val Wallace
- What is CBD?
- Why I left a gift to PSPA
- Will you help the UK’s largest research study in PSP & CBD?
News
- PSPA Helpline – Festive Holiday Opening Hours
- Call for Personal Essays on Dementia-related Experiences
- PSPA’s BBC Radio 4 Appeal Update – A Big Thanks to All Our Supporters
- Corticobasal Degeneration (CBD) Vs Corticobasal Syndrome (CBS) - Understanding the Difference
- How You Can Make a Difference With Your Festive Purchases
- Our Bauble Appeal Is Live - Dedicate A Bauble For Your Loved One Today
- Register to Attend our Free Research Information Day!
- Ferrer Has Completed Patient Recruitment for PROSPER Study
- Listen to Jon Garrard’s Story on BBC Radio 4 – Support PSPA’s Appeal Today
- PSP & CBD Guide Now Available to Download in Multiple Languages
- Save the Date for Neuro 2026!
- PSPA Announce New CEO
- Listen to PSPA on the New Episode of the Movers and Shakers Podcast
- Read the Brand New Edition of PSPA Matters
- New podcast episode! The benefit of movement
- Watch our Research Information Day 2 Recordings
- Amylyx Pharmaceuticals discontinue clinical trial for PSP
- New Portsmouth Support Group Starting in August
- New Masterclass: Falls and Mobility Management in PSP & CBD
- Make your Voice Heard in our Patient Survey
- Programme Grants for Applied Research (PGfAR) are Launching Soon
- PSPA's response to The Observer article
- Help #FixCHC this PSP & CBD Awareness Week
- Research helps to distinguish PSP from Parkinson's
- PSPA Podcast, Episode 2: understanding support and care
- Take part in research from home
- Register for our Research Information Session
- 2025 Impact Report: How you helped to make 30 years matter
- Thank you to our volunteers
- Watch our Brand New It Could Be CBD Animation
- Understood: An appeal to raise £2 million for PSP & CBD Research
- New funding released to help progress research
- PSPA Awareness Event in Gloucester
- Research finds length of gene not linked to PSP or CBD
- Small Research Grant funding confirmed for five studies
- Become a Support Group Helper!
- It's Brain Awareness Week!
- Series Three of the PSPA Podcast
- Volunteer to Help Create a Better Future
- New Carers Support Groups
- PSPA Christmas Opening Times
- Support understanding Winter Fuel Payments
- Research into diagnostic test celebrated International Conference
- Ferrer advances research into PSP
- SMALL RESEARCH PROJECTS YOU HELPED TO FUND
- Applications for Small Research Grants are now open!
- PSPA 30th Anniversary Awards Winners
- Information for young people launched
- Share your experience of PSP & CBD in #MyNeuroSurvey
- PSPA's Impact in 2023
- Apply for a 2024 Awareness Grant
- Show #WeCare by emailing your local Election Candidate
- PSPA celebrates its fabulous volunteers this June
- An update on the Amylyx Orion clinical trial
- PSPA counselling support now available with Rare Minds
- Sign up to attend our Research Information Session
- Register for the PSPA Family and Friends Day in Leeds
- Online Exercise Sessions begin this April
- Help design our 30th Anniversary cake!
- PSPA's 30th Anniversary Awards nomination period opens!
- First participant dosed in the Amylyx trial
- PSPA RAISING AWARENESS IN NEWS-STYLE PROGRAMME
- 2024 marks PSPA’s 30th Anniversary
- SPECIAL EDITION PSPA MATTERS NOW AVAILABLE!
- PSPA Christmas Opening times
- Virtual Study Day for Healthcare Professionals - watch the recording
- PSPA celebrates after receiving £164,000 National Lottery funding
- Watercolour book to raise funds for PSPA
- Series Two of the PSPA Podcast now live!
- Poster outlining phase 3 global study presented at Neuro 2023
- HRH The Duchess of Gloucester attends Neuro 2023 Sympsoium
- PSPA Matters Edition 3 now available!
- #BeAware Raffle - Winners announced!
- Register for our free Study Day for healthcare professionals
- Applications now open for Small Research Grants 2023
- Neuro 2023 Symposium - Call for Abstracts!
- Government investment into rare disease research to aid PSP & CBD
- Raise awareness with our #BeAware Raffle
- How you can apply for a PSPA Awareness Grant
- Help opticians look out for PSP
- PSPA publish a PSP & CBD State of Diagnosis report
- Save the date for the Neuro 2023 Symposium
- Carers Guide now available
- Andrew's Walk for Lindsay
- PSPA Survey shows 60% of people living with PSP & CBD are initially misdiagnosed
- Rob's epic drive to raise awareness of PSP
- 'Ask the experts' webinars for healthcare professionals
- Small Research Grants update!
- PSPA phone lines
- Volunteer Support Group Coordinators wanted!
- Christmas Opening Times
- Study looking into lived experiences of PSP
- Updated PSPA research leaflet now available
- Questions wanted for 'Ask the Expert' event
- Big Band Concert for PSPA
- Ed’s Lace Christmas Tree Challenge
- PSPA Matters hitting your doormats this November
- Help cheer #TeamPSPA at the London Marathon 2023!
- Could you place a PSPA collection tin?
- "I'm running the London Marathon for PSPA because of the support we've received"
- PSPA Open Day, 28 September
- PSPA Study Day for healthcare professionals
- Survey for people living with PSP & CBD
- Why I'm running six London Marathons for mum
- A VIRTUAL GOLDEN TRIANGLE CHALLENGE FOR MUM
- Family and friends fundraising for Shirley
- Amy's Robin Hood Half Marathon Challenge for her grandad
- Helping you with the cost-of-living crisis
- Fiona's Half Marathon Challenge in memory of her dad
- ABN Fellowship now available
- PSPA supporter to be a Commonwealth Games Baton Bearer
- A tribute to Sir Colin Blakemore
- Give A Voice Raffle Winners Announced
- Celebrating PSPA Volunteers
- Wear Ed's Lace to raise awareness of PSP & CBD
- Check out our Jubilee Tea Party Pack!
- PSPA invites applications for small research projects
- PSPA receives £45,000 from Global's Make Some Noise
- Carers Support Group to launch in March
- Share your story for Rare Disease Day 2022
- Your 10,000 Voices Awards Winners
- Mike's Awareness Raising Santa Dash at Brands Hatch
- PSPA welcomes a new CEO
- Make Some Noise for people living with PSP & CBD
- Study in dynamic networks in PSP
- Lindsey's 24 hour walk from Weymouth to Exmouth
- PSPA Podcast launches with support from Pavers
- Julie's 10,000ft sky dive for PSPA
- Elizabeth's 1,000miles cycle for PSPA
- Marc's 90-day weight loss challenge for PSPA
- Funding partnership with SpeakUnique
- PSPA welcomes a new Chair of Trustees
- Matt's Walking for Dave Challenge
- Jen's 50 mile run in memory of her grandad
- Pete's brave shave for PSPA
- Helping the 10,000 people living with PSP & CBD be heard
- Take part in a study to improve Google Assistant
- Ed’s Three Peaks Challenge to raise awareness of CBD
- Talbot Underwriting selects PSPA to be their 2021-22 charity partner
- Ellie's Half Marathon Challenge for PSPA
- Research identifies genetic variant which determines speed of PSP progression
- Participants wanted for study looking into mechanisms of PSP
- New report to bring rare diseases 'Out of the Shadows'
- PSPA awarded funding for delivery against Scotland’s Neurological Care and Support Framework
- Research shows neuroinflammation and tau co-localise in PSP
- My London Marathon Experience: It's great being part of #TeamPSPA
- My London Marathon experience: why, how and when.
- Durham University study into use of prism glasses
- Ask the Helpline - Live Q&A Session
- PSPA Funded Research Update
- OxQuip - Oxford study of Quantification in Parkinsonism
- Initial findings from the PROSPECT Study
- PASSPORT Study Discontinued
- 25 years of PSPA - interview with our founder Michael Koe
- Research north of the border: Dr Diane Swallow
- Sara Koe Research Fellowship - Dr Edwin Jabbari
- Working on Prof James Rowe’s PSPA -funded project - Patricia Vazquez Rodriguez
