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If you, or someone close to you, has recently been diagnosed with PSP or CBD it is likely you are experiencing a range of very strong emotions.

You may feel completely overwhelmed and have feelings of anger, denial, fear and sadness. Or you may feel a sense of relief having a name for the cause of your symptoms.


Don’t be too hard on yourself. Give yourself permission to take one day at a time as you come to terms with what’s happening.


We exist so that you do not need to go through this alone. We are here to help.


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Helpline and Information Service

How to contact us: Email: Telephone: 0300 0110 122

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Online Forum

Our forum HealthUnlocked is a safe place for people affected by PSP and CBD to share experiences and support each other with the challenges of living with the conditions.

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For carers

PSPA Publications

Publications for those affected by PSP and CBD We publish a number of information sheets and guides to help you through your journey with PSP or CBD. Our publications are updated on a regular basis and go through a thorough review process so that you can be confident the information is accurate and trustworthy.   …

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Join Us

Join Us

By joining PSPA you will strengthen our voice as we strive to ensure people living with PSP and CBD, their families and carers receive the best possible care and support.

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