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Just been diagnosed?

We exist so that you do not need to go through this alone. We are here to help.

If you, or someone close to you, has recently been diagnosed with PSP or CBD, it is likely you are experiencing a range of very strong emotions. You may feel completely overwhelmed and have feelings of anger, denial, fear and sadness.

Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). These rare neurological conditions can pose significant challenges, but you’re not alone in this journey.

At PSPA, we strive to empower patients, families, caregivers, and healthcare professionals with the necessary information, resources, and support.

Whether you’ve been recently diagnosed, are caring for a loved one, or are a healthcare provider seeking guidance, our organisation is here to assist every step of the way.

Through advocacy, research collaboration, educational programs, and compassionate support, we aim to raise awareness and improve the lives of those touched by PSP and CBD. Explore our site to learn more about these conditions, find valuable resources, and discover how you can join our mission.

Helpline and Information Service

“I spoke to you on several occasions and genuinely do not know how I would have coped at the time without you. You were always supportive, informative and helped steer me through a very difficult time for my husband and me.”

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Link Volunteer Service

Volunteers providing support to people and families affected by PSP & CBD.

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PSPA Publications

We publish a number of information sheets and guides to help you through your journey with PSP or CBD.

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Online Forum

Shared experiences and support.

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