Helpline: phone0300 0110 122 | Online Community

Just been diagnosed?

We exist so that you do not need to go through this alone. We are here to help.

If you, or someone close to you, has recently been diagnosed with PSP or CBD it is likely you are experiencing a range of very strong emotions.

You may feel completely overwhelmed and have feelings of anger, denial, fear and sadness.

Or you may feel a sense of relief having a name for the cause of your symptoms.

Don’t be too hard on yourself. Give yourself permission to take one day at a time as you come to terms with what’s happening.



Helpline and Information Service

“I spoke to you on several occasions and genuinely do not know how I would have coped at the time without you. You were always supportive, informative and helped steer me through a very difficult time for my husband and me.”

PSPA Publications

We publish a number of information sheets and guides to help you through your journey with PSP or CBD.