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Personal Experiences

There are thousands of people around the UK living with PSP and CBD. You can read some of their personal experiences here.

If you would like to share your personal experience of PSP or CBD, please complete our Share your PSP or CBD experience form and email it back to communications@pspassociation.org.uk

Ted’s story

“He did live life as full as he could do, right until the end in 2017. He remained connected to people and challenged himself in aid of charity.”

Craig’s story

“His reaction time was slow when driving, he became quiet and withdrawn and he was having balance issues.  We went to the GP and they said it was depression!”

Eleonora’s story

“Christmas was the day of her last smile. I was joking and she couldn’t help it, her quiet chuckle expressing a hilarious fit. I am glad that happened.”

Julia’s story

“This is the story of my journey towards acceptance and peace as I travel without a map through these unchartered waters.”

Phyllis’s story

“MY HUSBAND DONATED HIS BRAIN TO PROGRESS RESEARCH AND HELP OTHERS.”

Pam’s story

“LETTING PEOPLE HELP ME MEANT I COULD BE THERE FOR TONY WHEN HE NEEDED ME.”

Imogen’s story

“The lack of knowledge and understanding of PSP has inspired me to pursue a career in research.”

Bradley’s story

“Since it took so long to get to the bottom of dad’s illness, he was really keen on raising awareness of PSP.”

Dawn’s story

Dawn’s dad, Noel MacCoombe,  was a really athletic and active man, having played rugby and boxed when he was younger.

Karen’s story

“We continued to live life to the full.”

Mick’s Story

Mick, from Somerset, hasn’t let CBD stop him from enjoying a safari in South Africa.

Lynette’s story

Lynette, from Wokingham, explains how she copes with daily life with CBD

Susie’s Story

Mum’s immobility inspires physiotherapist daughter to take on 10k challenge