There are thousands of people around the UK living with PSP and CBD. You can read some of their personal experiences here.
If you would like to share your personal experience of PSP or CBD, please complete our Share your PSP or CBD experience form and email it back to communications@pspassociation.org.uk
Gemma’s story
“I hope in the future research studies will enable PSP to be diagnosed early and for a form of treatment to help improve quality of life.”
Claire’s story
“Mum would have received so much more support if she’d had an earlier diagnosis”
Lavinia’s story
“I have learned from my experience of caring for mum, so dad does have a lot more support.”
Tracy’s story
“Dad can’t speak anymore but his infectious smile and sense of humour keeps us all laughing.”
Ted’s story
“He did live life as full as he could do, right until the end in 2017. He remained connected to people and challenged himself in aid of charity.”
Craig’s story
“His reaction time was slow when driving, he became quiet and withdrawn and he was having balance issues. We went to the GP and they said it was depression!”
Eleonora’s story
“Christmas was the day of her last smile. I was joking and she couldn’t help it, her quiet chuckle expressing a hilarious fit. I am glad that happened.”
Pam’s story
“LETTING PEOPLE HELP ME MEANT I COULD BE THERE FOR TONY WHEN HE NEEDED ME.”
Imogen’s story
“The lack of knowledge and understanding of PSP has inspired me to pursue a career in research.”
Bradley’s story
“Since it took so long to get to the bottom of dad’s illness, he was really keen on raising awareness of PSP.”
Dawn’s story
Dawn’s dad, Noel MacCoombe, was a really athletic and active man, having played rugby and boxed when he was younger.
Mick’s Story
Mick, from Somerset, hasn’t let CBD stop him from enjoying a safari in South Africa.
Lynette’s story
Lynette, from Wokingham, explains how she copes with daily life with CBD
Susie’s Story
Mum’s immobility inspires physiotherapist daughter to take on 10k challenge
PSPA is the only UK charity dedicated to creating a better future for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We work to ensure the 10,000 people living with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate. We rely entirely on voluntary donations. PSPA is a registered charity in England and Wales (1037087) and in Scotland (SC041199).
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