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Understood – Is that too much to ask?

We’ve launched an appeal to help increase understanding of PSP & CBD through research.


We want to create the biggest step-change since PSPA was established 30 years ago.

This opportunity for change has been  inspired by a large legacy received in 2022 from Elizabeth Fiddler, requesting we advance research into PSP & CBD. As a carer, Elizabeth saw, first-hand the devastation PSP causes when her beloved husband was diagnosed.   This was not something she ever could recover from, and on making her final Will, Elizabeth gifted her entire estate so PSPA could create change.

In response, we have launched an appeal to help to turn our research programme on its head.

We want to raise £2 million for life-changing research

Driven by our community, people living with the diseases, their carers and families, to change the future, PSPA is now fighting for PSP & CBD to be Understood.

To become Understood, we are launching a £2 million appeal to fund research that will help unlock:

  • Quick and accurate diagnosis
  • Consistent standards of care providing symptom management within two months
  • drug trials to delay degeneration and extend life expectancy.

Involvement need not be complicated.  Consider opening your networks, sharing ideas, and join our community fighting for change.

Sign up to our community and learn how you can help by emailing

You can donate to support our ambitious Understood Appeal, to help improve understanding of PSP & CBD, below:



Jon Garrard, PSPA Trustee and former carer, is the Ambassador for our Understood Appeal.

Jon said: “As an Ambassador of the Understood Appeal, I am excited to be a part of what will be the boldest bravest, step change for PSPA since the charity was founded 30 years ago.

I am committed to supporting the appeal because it is personal.    I lost my dad, Chris Garrard to PSP, he is my inspiration.”

We all have a story to tell, and they all matter.



Tel: 07753236471