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Living with PSP & CBD

A wide range of information and support is available to those affected by PSP and CBD from PSPA and statutory services.

Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD) are challenging conditions affecting the daily lives of people diagnosed and their families. But you’re not alone.

We’ve created a range of resources specially curated to help support you from diagnosis to living life with these complex neurological disorders. Here, you’ll find the insights you need to navigate the symptoms and challenges, empowering you to live fully and fearlessly, despite PSP & CBD.

This space brings together expert medical advice, coping strategies, and inspiring stories from others in similar situations. Our focus is not only on managing the physical symptoms but also on improving the quality of life through emotional and psychological support.

Join us in exploring topics like medication management, adapting your living environment, maintaining mental well-being, and fostering essential connections. We believe in your strength and resilience, and we’re here to support you every step of the way.

You can also learn more about the conditions, watching our film: Understanding PSP & CBD.

Helpline and Information Service

“I spoke to you on several occasions and genuinely do not know how I would have coped at the time without you. You were always supportive, informative and helped steer me through a very difficult time for my husband and me.”

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Useful Organisations

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HSCP Supporting You

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Online Forum

Shared experiences and support.

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