Fundraising with PSPA
Fundraising with PSPA means more than just supporting our efforts to help those living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). It means becoming their lifeline and ensuring they have access to vital support, information and a community that can help them better navigate their journey with a rare neurodegenerative disease.
Every pound you help raise goes towards providing better and more accessible Helpline services, Support Group meetings, and research opportunities that improve awareness, diagnosis and care for people affected by PSP & CBD.
We understand that life can feel overwhelming when a loved one first receives a diagnosis. You may feel helpless and unable to process the implications of a CBD or PSP diagnosis. But fundraising for our charity can give you something to focus on and harness your energies towards helping the whole PSP & CBD community. Whether it’s training for a physical event or organising a tea party fundraiser, there are many ways to get involved and help.
This page will provide inspiration on the different ways to fundraise, what support is available and how you can get involved.
You can also make a donation to PSPA in any of the following ways:
- Donate over the phone, through the website or by post
- Set up a regular giving amount
- Leave a gift in your will
- Donate in memory of a loved one
Ideas for fundraising for PSPA
There are many ways of fundraising for PSPA. We feel grateful to our supporters who have led various fundraising efforts in the past, which have included:
- Coffee mornings
- Marathons
- Fundraising live streams
- Wedding celebrations
- Birthday parties
- Music events
- Charity football matches
- Boxing events
- Garden parties, and more.
There are plenty of other ways to raise funds for PSPA. You can take inspiration from our fundraising ideas or use your own for CBD & PSP fundraising. We welcome and appreciate all fundraising efforts. Once you have decided what you want to do, register your event with us so that we can help support you.
How can PSPA support your fundraiser
No matter how you choose to fundraise, our fundraising team will give you all the support and fundraising tools you need to make your event a great success, such as:
- Guidance on how to set up your fundraiser
- Practical fundraising pack
- Tea party pack
- Promotional poster
- Fundraising legal, and sponsorship advice
Most importantly, we will ensure that we promote and celebrate your fundraiser at every step and use the funds and donations raised to support vital CBD & PSP research and make our support services more accessible and useful for those affected by PSP & CBD.
Impact of your fundraising
Thanks to the fundraising efforts and donations of our supporters, PSPA can make a real difference to the quality of life of people living with Progressive Supranuclear Palsy and Corticobasal Degeneration. Every small donation and amount raised through fundraising counts, as we are able to support people affected by PSP & CBD.
Give people access to reliable guidance and support whenever they need it through our Helpline and information services.
Help vulnerable people make meaningful connections through robust Support Group networks.
Drive progress towards better understanding, treatment and care for people living with PSP & CBD through life-changing research.
Improve advocacy and awareness of PSP & CBD through better communication, influencing and awareness drives.
How can you get involved
Pathway to Progress
PSPA’s Pathway to Progress is a UK-wide virtual fundraising event where participants’ collective distances walked, run, or cycled will be logged to try to create a Pathway around Great Britain’s Coastline. The event takes place yearly, and anyone can get involved.
Ways you can support PSPA
Learn more about how Trusts, Foundations and Major Gifts can support our work
Read about the benefits of supporting PSPA with your business or organisation
We appreciate all our wonderful supporters who dedicate their time to charity fundraising or donate to PSPA. All your fundraising activities and donations help us make a real difference to the lives of families affected by PSP & CBD.
PSPA fundraising stories
Community fundraising
Michael Tulip
Event: Pokémon movie day event
Michael organised a fundraiser in October 2025 and brought his community together for a fun Pokémon movie day in memory of his father who lost his battle against PSPA in April 2025. The heart-warming gathering was attended by volunteers, neighbours, friends and families, and managed to raise much more than the target amount.
“People came from far and wide to support the PSPA at my Pokémon movie day. Volunteers, family and friends all came; it was an emotional day for everyone! But we had so much fun and got the word out there about what PSP is as well as raising funds for the cause.”
Challenge fundraising
Tomos Northey
Event: Swansea Half Marathon 2025
Tomos Northey and his friends took on the Swansea Half Marathon in honour of his mum Andrea, who was diagnosed with PSP and had previously run the half marathon twice. Family and friends came out in support for Tomos and Andrea, raising an amazing £3,200.
“Fundraising is deeply personal to me as my mum has PSP. It gives me both a sense of accomplishment and a positive distraction… It’s probably the best decision I’ve made, as it not only helps raise vital funds but also creates an opportunity to open up about being personally affected.”
Taking on a challenge podcast episode
Listen to our podcast episode, where Katy Butterill shares her experiences taking on a month-long walking challenge in honour of her Mum.
Contact us
If you have any questions, or would like to discuss anything further, please don’t hesitate to get in touch with the Fundraising team.
Tel: 01327 322414
Frequently asked questions
How does fundraising help people living with PSP or CBD?
Fundraising helps us improve and provide vital services to individuals and families affected by PSP & CBD. It helps fund our Helpline, Support Groups, information resources, awareness campaigns, and research initiatives. Every donation, no matter large or small, ensures that people have access to guidance, emotional support, community connection, and better understanding of these rare neurodegenerative conditions.
Is there a minimum fundraising amount I need to raise?
No, there is no minimum amount you need to raise. Every contribution makes a meaningful difference to those living with PSP & CBD. We appreciate and are grateful for all fundraising efforts, regardless of the amount raised.
Can I fundraise in memory of someone with PSP or CBD?
Yes, you can fundraise in memory of a loved one. It can be an impactful way to honour their life while helping others affected by PSP & CBD. Our Fundraising team will support you with everything you need to fundraise in memory of your loved one.
What are the most popular ways of fundraising for PSPA?
PSPA supporters take part in a wide range of activities for fundraising, including challenge events like runs, walks, and cycles, and community fundraisers such as coffee mornings, bake sales, garden parties, and quiz nights. But you can come up with your own idea for fundraising for PSPA and we will make sure you get all the support you need to make it a success.
What is Regular Giving and how does it help PSPA?
Regular Giving is donating a set amount each month. This continuous support helps PSPA sustain and improve our support services, including our Helpline, Support Groups, and awareness drives. Monthly donations also allow us to invest in life-changing research that aims to improve diagnosis, treatment, and care for people living with PSP & CBD.
Do you offer fundraising ideas or support packs?
Yes, PSPA can provide and support various fundraising ideas, along with practical support packs to help you plan and promote your event. These include posters, sponsorship forms, digital graphics, tea party materials, and legal guidance on safe and effective fundraising. We can send these to you once you register your fundraiser or get in touch with our Fundraising team.
How can I contact PSPA for support with my fundraising?
Our Fundraising team is always here to help. You can contact us by phone on 01327 322414 or email us at fundraising@pspassociation.org.uk to discuss your ideas, request support, or ask for materials for your event.
