Our trustees

Our Board of Trustees is responsible for overseeing the Chief Executive and Senior Management Team to ensure the charity is run well and remains solvent.

Trustees also ensure we comply with charity law and governance best practise.

The Board meets quarterly and trustees attend PSPA events throughout the year. They give all their time on a voluntary basis.

Screen Shot 2017-01-25 at 10.14.07

Simon Koe (Chair)

Simon is the eldest son of Sara Koe who was the inspiration behind PSPA being formed in 1995. He has been on the Board of Trustees for 17 years. Simon works as a Principal at Integro Insurance Lloyd’s Brokers and brings with him a wealth of business experience as well as personal experience. He has also run …

Find out more ...
Screen Shot 2017-01-25 at 10.15.45

Sir Colin Blakemore FMedSci FRS

Sir Colin is a British neurobiologist who has studied vision, development of the brain and neurodegenerative disease. He is Emeritus Professor of Neuroscience at Oxford and Professor of Neuroscience and Philosophy in the University of London. He was Chief Executive of the British Medical Research Council from 2003-7 and has been a scientific adviser to the …

Find out more ...
Shauna MacKenzie

Shauna Mackenzie

Shauna came to be involved with the charity through the personal experience of her mother having CBD. Although she had not been in contact with PSPA, the kind response Shauna received from the charity’s staff in response to a fundraising event in her mother’s name prompted her to find out more. She has helped run …

Find out more ...
Antoinette-crop-3

Antoinette Oglethorpe

Antoinette’s involvement with PSPA started in 2012 when she ran the London Marathon in memory of her father who had lived with the disease until he passed away in 2010.  Unfortunately, like many others, Antoinette’s father was not diagnosed fully and he did not benefit from the support the charity and others could have offered.  …

Find out more ...
Screen Shot 2017-01-25 at 10.25.00

Thomas Orchard FIH MI

Tom Orchard, a Fellow of the Institute of Hospitality and Master Innholder, is currently Regional General Manager for COMO Hotels and Resorts in London. In addition to looking after the Metropolitan by COMO and Halkin by COMO, Tom’s responsibilities include the sales divisions covering the EMEA and the Americas. With a wealth of business experience and contacts, Tom …

Find out more ...
Claire Perry (3)

Claire Perry OBE

Claire has an extensive career background in the NHS and joined the King’s Fund in 2011 as a Visiting Senior Fellow to support the programme of work on integrated care.She contributes to both policy and leadership development at the Fund. Previously Claire was Managing Director of the Imperial College NHS Trust, Deputy Chief Executive of the …

Find out more ...
timthumb

Sarah Marshall

Sarah became a member of the PSP Association in 2008 when her mum was first diagnosed. Sarah’s family’s story seems typical; a string of misdiagnoses and several painful years of watching an active, smiley, hard-working and modest lady deteriorate beyond recognition, without any real understanding of what was happening or why. Her mum’s decline in …

Find out more ...

Sylvia Denton

Sylvia is a highly experience healthcare leader, educator and manager who has had a distinguished clinical career as a nurse and health visitor. Sylvia has been a pioneer specialist nurse, specialising in breast cancer care and achieving national and international recognition for her work. She has served on many government bodies and played a significant …

Find out more ...