News - PSPA

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Our Bauble Appeal Is Live – Dedicate A Bauble For Your Loved One Today

The festive season can feel less bright when a loved one has been diagnosed with…

Pooja Pandya5th November 2025

Communications Information & Support Research

Register to Attend our Free Research Information Day!

Our last Research Information Session Day of 2025, is taking place on Thursday 13 November…

Colleen Wren31st October 2025

Blog Communications Information & Support Research

Ferrer Has Completed Patient Recruitment for PROSPER Study

Spanish pharmaceutical company, Ferrer, have announced they have completed recruitment of 220 patients for the…

Colleen Wren22nd October 2025

Blog Communications Fundraising Research

Listen to Jon Garrard’s Story on BBC Radio 4 – Support PSPA’s Appeal Today

Our BBC Radio 4 Appeal is now live! Thank you to everyone who tuned into…

Colleen Wren19th October 2025

Blog Communications Information & Support

PSP & CBD Guide Now Available to Download in Multiple Languages

Whether you are living with PSP or CBD, or care for someone who has been…

Pooja Pandya10th October 2025

Communications Information & Support Research

Save the Date for Neuro 2026!

PSPA and CurePSP will be partnering again next November to bring the Neuro 2026 Symposium,…

Colleen Wren25th September 2025

Blog Communications Information & Support

PSPA Announce New CEO

We are delighted to announce that Dr James Cusack will become the new CEO of…

Colleen Wren23rd September 2025

Communications Information & Support

Listen to PSPA on the New Episode of the Movers and Shakers Podcast

PSPA’s CEO Rebecca Packwood, and supporter Lisa Rodrigues who lives with CBD, were delighted to…

Colleen Wren20th September 2025

Blog Communications Information & Support

Read the Brand New Edition of PSPA Matters

The brand new edition of PSPA Matters is now available to read! We have another…

Colleen Wren12th September 2025

Communications

New podcast episode! The benefit of movement

Episode three of the PSPA Podcast 2025, has hit the airwaves! In this episode, we…

PSPA Admin2nd September 2025

Communications Research

Amylyx Pharmaceuticals discontinue clinical trial for PSP

This week, Amylyx Pharmaceuticals has made the decision to discontinue their Orion trial of AMX0035…

PSPA Admin28th August 2025

Communications Information & Support Research

Watch our Research Information Day 2 Recordings

We were delighted to hold our second Research Information Day of the year on Thursday…

Colleen Wren28th August 2025

Blog

New Portsmouth Support Group Starting in August

We are excited that a brand new Support Group will be starting in Portsmouth on…

Colleen Wren20th August 2025

Communications Information & Support

New Masterclass: Falls and Mobility Management in PSP & CBD

Are you a healthcare professional seeking to enhance your expertise in managing falls and mobility…

PSPA Admin7th August 2025

Communications Information & Support Research

Make your Voice Heard in our Patient Survey

We have now launched our 2025 Patient Survey. Everything we do at PSPA is shaped…

Colleen Wren28th July 2025

Blog Information & Support Research

Programme Grants for Applied Research (PGfAR) are Launching Soon

The National Institute for Health and Care Research (NIHR) is opening its Programme Grants for…

Colleen Wren15th July 2025

Communications

PSPA’s response to The Observer article

We were shocked and disappointed to learn of the allegations made about Raynor and Moth…

PSPA Admin7th July 2025

Communications

Help #FixCHC this PSP & CBD Awareness Week

Today marks the first day of PSP & CBD Awareness 2025! Continuing our commitment to…

PSPA Admin23rd June 2025

Dr Ed Jabbari working in a research lab.

Communications Research

Research helps to distinguish PSP from Parkinson’s

A recent study led by Dr Ed Jabbari and part funded by PSPA, has shown…

PSPA Admin20th June 2025

Communications Information & Support

PSPA Podcast, Episode 2: understanding support and care

Episode 2 of series 3 of the PSPA Podcast has hit the airwaves! In this…

PSPA Admin16th June 2025