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By joining PSPA you will help strengthen our voice.

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What is PSP?

PSP is a Parkinson’s-like neurological condition.

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What is CBD?

CBD is a degenerative brain disease.

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Just been diagnosed?

You do not need to go through this alone.

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5K for PSPA

Join us for our first ever virtual race between Monday 19 and Sunday 25 March 2018   5K for PSPA is a 5k race to raise money to support people affected by CBD & PSP, and to fund research into both devastating conditions. It’s a virtual race, which means you can run 5k anywhere and …

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Who are Team PSPA?

We aim to provide practical and emotional support for those living with PSP & CBD, their families and carers.

PSP Association (PSPA) is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We rely entirely on voluntary donations.

Upcoming Events

Kent Local Group

Kent LG Venue

We would like to invite you to the Kent Local Group meetings which are being run by our volunteer coordinator, Sarah Marshall.  Sarah has personal experience of PSP and is an active Association member.

Nottingham Local Group

Nottingham LG

Volunteer Nicola Daykin runs a “Get Together” every month for those of you affected by PSP and CBD. Join her on the first Monday of the month for a coffee and a chat in an informal setting.  It is a chance to meet people in a similar situation, sharing ideas and suggestions and to check …

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Our draft strategy – what would make a difference to you?


This is an exciting time for PSPA. In the winter edition of PSP Matters, we stated that we wanted to develop a strategy that set out our goals for the next three years. Our aim was to reach more people living with PSP & CBD than ever before and provide support for everyone affected by …

Reorganisation of our Information & Support Services


You just need one number for support – our Helpline

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There are many ways to help raise funds.

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Raise Funds

We rely entirely on voluntary donations to fund our work.

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Volunteer with us

Ordinary people doing extraordinary things.

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