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By joining PSPA you will help strengthen our voice.

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What is PSP?

PSP is a Parkinson’s-like neurological condition.

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What is CBD?

CBD is a degenerative brain disease.

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Just been diagnosed?

You do not need to go through this alone.

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5K for PSPA

Join us for our first ever virtual race between Monday 19 and Sunday 25 March 2018   5K for PSPA is a 5k race to raise money to support people affected by CBD & PSP, and to fund research into both devastating conditions. It’s a virtual race, which means you can run 5k anywhere and …

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Who are Team PSPA?

We aim to provide practical and emotional support for those living with PSP & CBD, their families and carers.

PSP Association (PSPA) is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We rely entirely on voluntary donations.

Upcoming Events

Kent Local Group

Kent LG Venue

We would like to invite you to the Kent Local Group meetings which are being run by our volunteer coordinator, Sarah Marshall.  Sarah has personal experience of PSP and is an active Association member.

Nottingham Local Group

Nottingham LG

Volunteer Nicola Daykin run a “Get Together” every month for those of you affected by PSP and CBD. Join them on the first Monday of the month for a coffee and a chat in an informal setting.  It is a chance to meet people in a similar situation, sharing ideas and suggestions and to check …

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Scottish Fellowship study ready to recruit participants

Kate Arkell

PSPA and the office of the Scottish Chief Scientist are delighted that our jointly funded research study is ready to begin recruiting people with PSP and CBD from across Scotland. The study, entitled “Improving diagnostic and care pathways in PSP and CBD” is being conducted by Dr Diane Swallow, a Neurology Registrar and Clinical Research …

PSP Clinical Trial to Start Recruiting UK Participants

Kate Arkell

An international clinical trial of a potential new treatment for Progressive Supranuclear Palsy (PSP) will soon start recruiting participants in the relatively early stages of the disease. The phase II trial involves a new intravenous drug which is being developed by Biogen, a biotechnology company specializing in developing medicines for neurological conditions and rare genetic …

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There are many ways to help raise funds.

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Raise Funds

We rely entirely on voluntary donations to fund our work.

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Volunteer with us

Ordinary people doing extraordinary things.

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