Inspiration and Blog Spot

Jo Gass

"I think I’ve been volunteering for four years now. It gives me great pleasure to be able to help and support people who are diagnosed with PSP or CBD. I’ve met some lovely people and it’s always uplifting after you volunteered. Although can be little sad too."

Lisa Silcock

"I think I’ve been volunteering for about a year now and the thing I like most about it is helping others cope with very difficult circumstances and to promote the wonderful support that PSPA provide."

Eram Osman

"I lend my support wherever I can. Sometimes that’s helping the marketing team with website research, raising awareness across social channels, or donating my card designs for PSPA e cards. I also take on running challenges to raise funds and cheer on #TeamPSPA at Tower Bridge during the London Marathon. What I love most is that supporting PSPA has become part of my life. After losing my mum to PSP in 2016, I realised how far we still have to go. Awareness and funding are absolutely vital, and if I can play even a small part in that, it might help someone in the future."

David Pugh

"Having cared for my wife Rosalind (PSP) I have an understanding of the difficulties carers face. I take great satisfaction in helping carers manage the hardships they encounter.
I distributed the Red Eye posters to seven opticians in 2025 and Befriending Volunteer leaflets to sixteen surgeries, marking against our website how to access ‘Resources for Professionals’. On my suggestion, the local Hospice has established a reference library for staff, to which a number of professional PSPA booklets & leaflets have been sent."

Linda Moore

"I feel not only have I offered support to many of those in need after diagnosis, but have made many friends along the way. It is satisfying to be able to just be there and offer support to those who need it. At the Norwich Support Group we are a team and we support each other."

Val Wallace

"I first registered with the PSPA when Neil was diagnosed with PSP in 2016 and set up the Support Group in 2018, then having spoken to a local GP about raising awareness of the condition I decided to enrol as an Education Volunteer. When the PRIM team was set up in 2022 Carol emailed me to find out if I was interested in joining the group. Being part of this group has its benefits because I now have a greater knowledge and understanding of the ongoing research projects which I can include in my presentations. I enjoy all my roles as a volunteer, and in particular, being able to support the families caring for a relative with PSP/CBD is very important and it is always a positive experience. As a retired teacher, raising awareness, improving the knowledge, and understanding of these conditions to local organisations is also an important part of my work."

Kathryn Timmons

"I think that I will give up doing the Helpline which I think I joined about 10 years ago. I have always been committed to helping PSP and was very grateful for the support when my husband was first diagnosed. We hosted a support group for about 10 years until my husband died and I am still in touch with some of the people who came to our group. Our philosophy was always to talk about what we could do, rather than dwell too much on the difficulties."

Natalie Smith