Helpline: phone0300 0110 122 | Online Community

Helpline and Information Service

“I spoke to you on several occasions and genuinely do not know how I would have coped at the time without you. You were always supportive, informative and helped steer me through a very difficult time for my husband and me.”

If you need to contact us, please use the information below:

Telephone: 0300 0110 122

We offer a confidential telephone and email service.

We are open Monday through Friday from 9am to 5pm and 7pm to 9pm. Please leave a message on our answerphone if we are unavailable and we will get back to you. Telephone calls are charged at the cost of a local rate call (depending on your service provider). If you are calling from a mobile or a landline that has inclusive minutes, your call will be free (the call will use your allocated minutes)

The Helpline can provide:

  • Information on all aspects of living with PSP & CBD, such as symptom management, benefits and entitlements and everyday living.
  • Emotional and practical support
  • Contact details for local support, which may include a Local Group
  • Information about how the PSPA can support you
  • Information about health and social care and how to access these services
  • Signposting to other sources of information.

Your PSPA Support Networks

Our Support Networks provide an invaluable part of the PSPA service and make a huge difference to those who attend. Their aim is to provide a welcoming and friendly place for people affected by PSP & CBD, including family and friends, to meet up on a regular basis to share information and just chat.

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Family and Friends Days

Our Family and Friends Days provide an informal opportunity for people living with PSP and CBD, their families and those who care for them to come together to learn more about research and care, the work of PSPA and to meet others affected by both conditions.

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We publish a number of information sheets and guides to help you through your journey with PSP or CBD.

Our publications are updated on a regular basis and go through a thorough review process so that you can be confident the information is accurate and trustworthy.

Most of our publications are downloadable however if you would prefer a printed format please contact us.

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Online Forum

HealthUnlocked, our online forum, provides the perfect opportunity to share experiences and support each other with the challenges of living with PSP and CBD.

“I feel part of a group and not just dealing with things on my own . I now also have a better understanding of PSP”

Join Today!

PSPA Publications

We publish a number of information sheets and guides to help you through your journey with PSP or CBD.