PSP Association (PSPA) is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We rely entirely on voluntary donations.

“We got in touch with the PSPA helpline to get some information and guidance. This was incredibly helpful and useful as were the PSPA local group meetings that we attended.”

Amy Lane, whose grandfather lives with PSP.

Vision And Mission

Our Vision We aim to improve the lives of everyone affected by PSP and CBD, while funding research to seek a cure. Our Mission We promote and fund research to understand the causes of PSP and CBD, improve diagnosis, develop new treatments and ultimately find a cure. We provide everyone affected by PSP and CBD …

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The Difference We Make

PSPA provides support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure for these conditions. Our aim is that people affected by PSP and CBD do not feel they have to face the future alone. To find out more about the difference we make, download our …

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Our Trustees

Our Board of Trustees is responsible for overseeing the Chief Executive and Senior Management Team to ensure the charity is run well and remains solvent. Trustees also ensure we comply with charity law and governance best practise. The Board meets quarterly and trustees attend PSPA events throughout the year. They give all their time on …

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Work With Us

We employ around 20 staff in a range of roles in the regions and at our head office in Milton Keynes.       Helpline Care Navigator’s We are looking for two Helpline Care Navigators to join our dynamic team in providing professional and comprehensive support to people living with PSP, CBD, their families and …

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International Organisations

PSP Association covers the United Kingdom and works very closely with other PSP organisations across the world working together supporting research and the provision of information and support into PSP and CBD.

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