About us main pic Staff and volunteers

PSP Association (PSPA) is a national charity providing support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure. We rely entirely on voluntary donations.

“We got in touch with the PSPA helpline to get some information and guidance. This was incredibly helpful and useful as were the PSPA local group meetings that we attended.”

Amy Lane, whose grandfather lives with PSP.

MP Stuart Andrew visits the local Leeds PSP Association meeting at St Chad's Parish centre
Picture by Vicky Matthers iconphotomedia  

CBD sufferer Dave Howarth with his wife Catherine Howarth

Vision And Mission

Our Vision We aim to improve the lives of everyone affected by PSP and CBD, while funding research to seek a cure. Our Mission We promote and fund research to understand the causes of PSP and CBD, improve diagnosis, develop new treatments and ultimately find a cure. We provide everyone affected by PSP and CBD …

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The difference we make

The Difference We Make

PSPA provides support and information to people living with PSP and CBD, while funding research into treatments and ultimately a cure for these conditions. Our aim is that people affected by PSP and CBD do not feel they have to face the future alone. To find out more about the difference we make, download our …

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Our trustees

Our Trustees

Our Board of Trustees is responsible for overseeing the Chief Executive and Senior Management Team to ensure the charity is run well and remains solvent. Trustees also ensure we comply with charity law and governance best practise. The Board meets quarterly and trustees attend PSPA events throughout the year. They give all their time on …

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Work for us

Work With Us

We employ around 20 staff in a range of roles in the regions and at our head office in Towcester, Northants. Please find details of current vacancies below.   Chief Executive Based at Towcester, Northampton, with potential for some remote working. We want to build on our foundation of committed community, voluntary and Trust donors …

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International Organisations

PSP Association covers the United Kingdom and works very closely with other PSP organisations across the world working together supporting research and the provision of information and support into PSP and CBD.

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