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About us

PSPA is the only UK charity dedicated to creating a better future for everyone affected by PSP & CBD.

Our Purpose

Our purpose is to create a better future for everyone affected by PSP & CBD.

Our Goals

Our Goals are to:

  1. Enable people living with PSP & CBD and their families to live their best lives possible with high quality support and information
  2. Improve the quality of life of people living with PSP & CBD through research, education and awareness raising
  3. Put the voice of people living with PSP or CBD at the heart of what we do. 

Our Commitments

Our commitments apply to everything we say and everything we do. 

  • To be courageous in making sure the voices of people living with PSP & CBD are heard. Standing up for a better life for people and having a tenacious commitment to change, even in the face of setback
  • To be ambitious – to be the leaders in the field of PSP & CBD in the UK.  To be willing to listen and learn and to strive for excellence and impact
  • To work collaboratively, to inspire people externally and internally, to bring their individual talents together to improve outcomes
  • To respect, value and recognise everyone’s contribution.  Empowering people and building a team which champions Equality, Diversity, and Inclusion. 

The difference we make

We work to ensure the 10,000 people with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate.

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Our Trustees

Our Board of Trustees is responsible for overseeing the Chief Executive and Senior Management Team to ensure the charity is run well and remains solvent.

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Our Research Committee

A Sub-Committee reporting to the Board of Trustees, PSPA’s Research Committee makes recommendations in relation to PSPA’s research programme.

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Work with us

We employ around 20 staff in a range of roles in the regions and at our head office in Milton Keynes, Buckinghamshire.

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Contact us

PSPA Margaret Powell House, 415a Midsummer Boulevard, Milton Keynes, MK9 3BN

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