There are thousands of people around the UK caring for loved ones living with PSP & CBD.
We share a few of their stories …
Jason's story
“Get in touch with PSPA. The help and information you receive from them will prepare you much better for the future ahead.”
Liz's Story
“Attending PSPA Support Groups was very valuable. We learned a lot about the progression of PSP as well as being connected to other families affected.”
Steph's story
“It really feels like PSPA listened to carers’ needs and helps them to get a break from the relentless nature of unpaid caring.”
A Family's Story
“The diagnosis was not explained at all. They just told us to get in touch with PSPA and that they’d see us in six months.”
Carol's story
“I’m lucky in that I have excellent backup. I don’t know what I would do without it”
Elizabeth's Story
“It is so important for health professionals to be educated because when they are, it really makes a difference when it matters the most.”
Amy’s Story
Grandad had always been well spoken, articulate, very private and fiercely independent.
Maureen’s Story
Maureen Horne, from Harpenden, shares this honest account of caring for her late husband Gordon, who lived with PSP.
PSPA is the only UK charity dedicated to creating a better future for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We work to ensure the 10,000 people living with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate. We rely entirely on voluntary donations. PSPA is a registered charity in England and Wales (1037087) and in Scotland (SC041199).
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