CommunicationsInformation & Support Series Two of the PSPA Podcast now live! The PSPA Podcast was launched with support of Pavers in 2021, with the aim to…PSPA Admin7th November 2023
BlogCommunicationsInformation & Support PSPA Matters Edition 3 now available! Exiting news - Edition 3 of our magazine, PSPA Matters, is now available to download…PSPA Admin6th October 2023
CommunicationsInformation & Support How you can apply for a PSPA Awareness Grant This PSP & CBD Awareness Week, we are pleased to be launching our new PSP…PSPA Admin19th June 2023
CommunicationsInformation & Support Help opticians look out for PSP This PSP & CBD Awareness Week we are launching a new Red Flag poster. Our…PSPA Admin18th June 2023
CommunicationsInformation & Support PSPA publish a PSP & CBD State of Diagnosis report PSPA has published a State of Diagnosis report today, following feedback received from our 2022…PSPA Admin17th June 2023
Information & Support Carers Guide now available As part of our activity for Carers Week, we are pleased to be launching a…PSPA Admin5th June 2023
CommunicationsInformation & Support PSPA Survey shows 60% of people living with PSP & CBD are initially misdiagnosed The PSPA survey of people living with PSP & CBD highlights diagnosis of the condition…PSPA Admin11th April 2023
CommunicationsInformation & Support ‘Ask the experts’ webinars for healthcare professionals We are pleased to have developed a series of 'Ask the expert' webinars with members…PSPA Admin28th March 2023
CommunicationsInformation & SupportVolunteering Volunteer Support Group Coordinators wanted! During 2023, PSPA would like to extend our support across the UK, so all families…Alex6th January 2023
CommunicationsInformation & SupportResearch Registration now open for the Research Information Day We are pleased to confirm registration for the Research Information Day is now open! The…Alex12th December 2022
CommunicationsInformation & Support Christmas Opening Times Our office and Helpline hours will change slightly over the Christmas period. To ensure you…Alex7th December 2022
Information & SupportResearch Updated PSPA research leaflet now available Our leaflet, presenting current understanding of PSP & CBD causes and reviewing current research has…PSPA Admin24th November 2022
Information & Support Questions wanted for ‘Ask the Expert’ event PSPA is producing an ‘Ask the Expert’ webinar supported by the multidisciplinary team (MDT) from…PSPA Admin15th November 2022
CommunicationsInformation & Support Ed’s Lace Christmas Tree Challenge The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…PSPA Admin10th November 2022
CommunicationsInformation & Support PSPA Matters hitting your doormats this November The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…PSPA Admin1st November 2022
CommunicationsInformation & Support PSPA Open Day, 28 September On Wednesday 28 September, we will be pleased to welcome supporters wide and far to…PSPA Admin26th September 2022
Information & Support PSPA Study Day for healthcare professionals We are pleased to confirm the return of our well-attended Study Day for healthcare professionals.…PSPA Admin21st September 2022
CommunicationsInformation & SupportResearch Survey for people living with PSP & CBD At the beginning of August PSPA sent you a copy of the 2022 patient survey. …PSPA Admin7th September 2022
CommunicationsFundraisingInformation & Support Wear Ed’s Lace to raise awareness of PSP & CBD Wear Ed's Lace to raise awareness of PSP & CBD.PSPA Admin23rd May 2022
CommunicationsFundraisingInformation & Support Share your story for Rare Disease Day 2022 This year, Rare Disease Day is taking place on 28 February. The themes of the…PSPA Admin7th February 2022