Information & Support Questions wanted for ‘Ask the Expert’ event PSPA is producing an ‘Ask the Expert’ webinar supported by the multidisciplinary team (MDT) from…PSPA Admin15th November 2022
CommunicationsInformation & Support Ed’s Lace Christmas Tree Challenge The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…PSPA Admin10th November 2022
CommunicationsInformation & Support PSPA Matters hitting your doormats this November The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…PSPA Admin1st November 2022
CommunicationsInformation & Support PSPA Open Day, 28 September On Wednesday 28 September, we will be pleased to welcome supporters wide and far to…PSPA Admin26th September 2022
Information & Support PSPA Study Day for healthcare professionals We are pleased to confirm the return of our well-attended Study Day for healthcare professionals.…PSPA Admin21st September 2022
CommunicationsInformation & SupportResearch Survey for people living with PSP & CBD At the beginning of August PSPA sent you a copy of the 2022 patient survey. …PSPA Admin7th September 2022
CommunicationsFundraisingInformation & Support Wear Ed’s Lace to raise awareness of PSP & CBD Wear Ed's Lace to raise awareness of PSP & CBD.PSPA Admin23rd May 2022
CommunicationsFundraisingInformation & Support Share your story for Rare Disease Day 2022 This year, Rare Disease Day is taking place on 28 February. The themes of the…PSPA Admin7th February 2022
CommunicationsInformation & Support PSPA welcomes a new CEO Everyone at PSPA is extremely pleased to be welcoming our new CEO, Rebecca Packwood, to…PSPA Admin1st November 2021
CommunicationsFundraisingInformation & Support Make Some Noise for people living with PSP & CBD We are pleased to confirm PSPA has been selected to be part of the 2021…PSPA Admin30th September 2021
CommunicationsInformation & Support PSPA Podcast launches with support from Pavers PSPA has launched a podcast for carers thank to the kind support of The Pavers…PSPA Admin10th June 2021
Information & Support Funding partnership with SpeakUnique PSPA are excited to be offering funding for voice banking through a partnership with SpeakUnique.…PSPA Admin15th April 2021
CommunicationsInformation & Support PSPA welcomes a new Chair of Trustees PSPA is pleased to be welcoming a new Chair to lead its Board of Trustees.…PSPA Admin31st March 2021
CommunicationsInformation & Support Helping the 10,000 people living with PSP & CBD be heard This Rare Disease Day, 28 February, PSPA is launching a new campaign to help people…PSPA Admin28th February 2021
Information & Support PSPA awarded funding for delivery against Scotland’s Neurological Care and Support Framework PSPA is delighted to have successfully bid for a round 1 funded project for delivery…PSPA Admin16th October 2020
CommunicationsInformation & Support Ask the Helpline – Live Q&A Session On Wednesday 10 June, to help mark Carers Week, PSPA is launching the first of…PSPA Admin4th June 2020
CommunicationsInformation & SupportResearchVolunteering PSPA Funded Research Update Since the lockdown began, many medical researchers who also usually hold clinical posts such as…PSPA Admin20th May 2020
CommunicationsFundraisingInformation & SupportResearchVolunteering Initial findings from the PROSPECT Study Research estimates that up to 10,000 people may be living with PSP & CBD in…PSPA Admin20th December 2019
CommunicationsFundraisingInformation & SupportResearchVolunteering 25 years of PSPA – interview with our founder Michael Koe “We were so upset that no one seemed to know or care about PSP.” When…PSPA Admin5th April 2019