Information & Support Archives - Page 2 of 3

Helpline: 0300 0110 122

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Communications Information & Support

PSPA Survey shows 60% of people living with PSP & CBD are initially misdiagnosed

The PSPA survey of people living with PSP & CBD highlights diagnosis of the condition…

PSPA Admin11th April 2023

Communications Information & Support

‘Ask the experts’ webinars for healthcare professionals

We are pleased to have developed a series of 'Ask the expert' webinars with members…

PSPA Admin28th March 2023

Communications Information & Support Volunteering

Volunteer Support Group Coordinators wanted!

During 2023, PSPA would like to extend our support across the UK, so all families…

PSPA Admin6th January 2023

Communications Information & Support Research

Registration now open for the Research Information Day

We are pleased to confirm registration for the Research Information Day is now open! The…

PSPA Admin12th December 2022

Communications Information & Support

Christmas Opening Times

Our office and Helpline hours will change slightly over the Christmas period. To ensure you…

PSPA Admin7th December 2022

Information & Support Research

Updated PSPA research leaflet now available

Our leaflet, presenting current understanding of PSP & CBD causes and reviewing current research has…

PSPA Admin24th November 2022

Information & Support

Questions wanted for ‘Ask the Expert’ event

PSPA is producing an ‘Ask the Expert’ webinar supported by the multidisciplinary team (MDT) from…

PSPA Admin15th November 2022

Communications Information & Support

Ed’s Lace Christmas Tree Challenge

The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…

PSPA Admin10th November 2022

Communications Information & Support

PSPA Matters hitting your doormats this November

The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…

PSPA Admin1st November 2022

Communications Information & Support

PSPA Open Day, 28 September

On Wednesday 28 September, we will be pleased to welcome supporters wide and far to…

PSPA Admin26th September 2022

Information & Support

PSPA Study Day for healthcare professionals

We are pleased to confirm the return of our well-attended Study Day for healthcare professionals.…

PSPA Admin21st September 2022

Communications Information & Support Research

Survey for people living with PSP & CBD

At the beginning of August PSPA sent you a copy of the 2022 patient survey. …

PSPA Admin7th September 2022

Communications Fundraising Information & Support

Wear Ed’s Lace to raise awareness of PSP & CBD

Wear Ed's Lace to raise awareness of PSP & CBD.

PSPA Admin23rd May 2022

Communications Fundraising Information & Support

Share your story for Rare Disease Day 2022

This year, Rare Disease Day is taking place on 28 February. The themes of the…

PSPA Admin7th February 2022

Communications Information & Support

PSPA welcomes a new CEO

Everyone at PSPA is extremely pleased to be welcoming our new CEO, Rebecca Packwood, to…

PSPA Admin1st November 2021

Communications Fundraising Information & Support

Make Some Noise for people living with PSP & CBD

We are pleased to confirm PSPA has been selected to be part of the 2021…

PSPA Admin30th September 2021

Communications Information & Support

PSPA Podcast launches with support from Pavers

PSPA has launched a podcast for carers thank to the kind support of The Pavers…

PSPA Admin10th June 2021

Information & Support

Funding partnership with SpeakUnique

PSPA are excited to be offering funding for voice banking through a partnership with SpeakUnique.…

PSPA Admin15th April 2021

Communications Information & Support

PSPA welcomes a new Chair of Trustees

PSPA is pleased to be welcoming a new Chair to lead its Board of Trustees.…

PSPA Admin31st March 2021

Communications Information & Support

Helping the 10,000 people living with PSP & CBD be heard

This Rare Disease Day, 28 February, PSPA is launching a new campaign to help people…

PSPA Admin28th February 2021

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PSPA is the only UK charity dedicated to creating a better future for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We work to ensure the 10,000 people living with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate. We rely entirely on voluntary donations. PSPA is a registered charity in England and Wales (1037087) and in Scotland (SC041199).