Save the date for the Neuro 2023 Symposium Research Save the date for the Neuro 2023 Symposium This October we are teaming up with CurePSP in the USA to host the Neuro…PSPA Admin12th June 2023
Carers Guide now available Information & Support Carers Guide now available As part of our activity for Carers Week, we are pleased to be launching a…PSPA Admin5th June 2023
Recordings of PSPA Research Information Day Research Recordings of PSPA Research Information Day Our 2023 Research Information Day was enjoyed by more than 200 online attendees on Friday…PSPA Admin25th May 2023
Andrew’s Walk for Lindsay BlogCommunicationsFundraising Andrew’s Walk for Lindsay Andrew Coney from Clitheroe, Lancashire, is stepping up awareness in his local area with a…PSPA Admin25th May 2023
PSPA Survey shows 60% of people living with PSP & CBD are initially misdiagnosed CommunicationsInformation & Support PSPA Survey shows 60% of people living with PSP & CBD are initially misdiagnosed The PSPA survey of people living with PSP & CBD highlights diagnosis of the condition…PSPA Admin11th April 2023
Rob’s epic drive to raise awareness of PSP CommunicationsFundraising Rob’s epic drive to raise awareness of PSP PSPA supporter Rob Hutchings will be beginning an epic drive from John O'Groats to Lands…PSPA Admin3rd April 2023
‘Ask the experts’ webinars for healthcare professionals CommunicationsInformation & Support ‘Ask the experts’ webinars for healthcare professionals We are pleased to have developed a series of 'Ask the expert' webinars with members…PSPA Admin28th March 2023
Small Research Grants update! BlogCommunications Small Research Grants update! Thanks to the kind donations of our supporters, who raised more than £10,000 in our…PSPA Admin2nd February 2023
PSPA phone lines BlogCommunicationsFundraising PSPA phone lines On Friday, 27 January, we will be moving over to a new telephone provider. We…PSPA Admin26th January 2023
Volunteer Support Group Coordinators wanted! CommunicationsInformation & SupportVolunteering Volunteer Support Group Coordinators wanted! During 2023, PSPA would like to extend our support across the UK, so all families…PSPA Admin6th January 2023
Registration now open for the Research Information Day CommunicationsInformation & SupportResearch Registration now open for the Research Information Day We are pleased to confirm registration for the Research Information Day is now open! The…PSPA Admin12th December 2022
Christmas Opening Times CommunicationsInformation & Support Christmas Opening Times Our office and Helpline hours will change slightly over the Christmas period. To ensure you…PSPA Admin7th December 2022
Study looking into lived experiences of PSP Research Study looking into lived experiences of PSP This week the findings of a study looking into the lived experience of people living…PSPA Admin1st December 2022
Updated PSPA research leaflet now available Information & SupportResearch Updated PSPA research leaflet now available Our leaflet, presenting current understanding of PSP & CBD causes and reviewing current research has…PSPA Admin24th November 2022
Questions wanted for ‘Ask the Expert’ event Information & Support Questions wanted for ‘Ask the Expert’ event PSPA is producing an ‘Ask the Expert’ webinar supported by the multidisciplinary team (MDT) from…PSPA Admin15th November 2022
Big Band Concert for PSPA Blog Big Band Concert for PSPA PSPA supporter Marylyn Dodwell-Lees from St Neots and Phil Hammond from Bedford have organised the…PSPA Admin14th November 2022
Ed’s Lace Christmas Tree Challenge CommunicationsInformation & Support Ed’s Lace Christmas Tree Challenge The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…PSPA Admin10th November 2022
PSPA Matters hitting your doormats this November CommunicationsInformation & Support PSPA Matters hitting your doormats this November The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…PSPA Admin1st November 2022
Help cheer #TeamPSPA at the London Marathon 2023! Blog Help cheer #TeamPSPA at the London Marathon 2023! We are currently looking for volunteers to make some noise at next year’s TCS London…PSPA Admin18th October 2022
Could you place a PSPA collection tin? Blog Could you place a PSPA collection tin? Looking for a simple and effective way of raising funds and awareness for PSPA? Just…PSPA Admin18th October 2022