Information & Support Funding partnership with SpeakUnique PSPA are excited to be offering funding for voice banking through a partnership with SpeakUnique.…PSPA Admin15th April 2021
CommunicationsInformation & Support PSPA welcomes a new Chair of Trustees PSPA is pleased to be welcoming a new Chair to lead its Board of Trustees.…PSPA Admin31st March 2021
Fundraising Matt’s Walking for Dave Challenge Matt More from Sheffield will be walking 130 miles in a month in honour of…PSPA Admin16th March 2021
Fundraising Jen’s 50 mile run in memory of her grandad On 1 March, Jen Rhodes from Liverpool began a 50-mile running challenge to help raise…PSPA Admin12th March 2021
Fundraising Pete’s brave shave for PSPA Peter Morton from Derby is planning to shave off his hair and beard to help…PSPA Admin2nd March 2021
CommunicationsInformation & Support Helping the 10,000 people living with PSP & CBD be heard This Rare Disease Day, 28 February, PSPA is launching a new campaign to help people…PSPA Admin28th February 2021
CommunicationsResearch Take part in a study to improve Google Assistant A team of researchers is currently looking for people with speech difficulties to take part…PSPA Admin19th February 2021
CommunicationsFundraising Ed’s Three Peaks Challenge to raise awareness of CBD Ed Warth is currently training to climb the Three Peaks this August to raise awareness…PSPA Admin15th February 2021
CommunicationsFundraising Talbot Underwriting selects PSPA to be their 2021-22 charity partner We are pleased to announce Talbot Underwriting has selected PSPA to be their charity partner…PSPA Admin14th January 2021
Fundraising Ellie’s Half Marathon Challenge for PSPA An Essex-based woman is training to take part in a half marathon to raise awareness…PSPA Admin8th January 2021
Research Research identifies genetic variant which determines speed of PSP progression New research has identified a genetic variant which determines how quickly the neurodegenerative condition Progressive…PSPA Admin18th December 2020
Research Participants wanted for study looking into mechanisms of PSP Participants are being sort for a research study looking into the mechanisms of PSP and to…PSPA Admin13th November 2020
CommunicationsResearch New report to bring rare diseases ‘Out of the Shadows’ Following nine months of consultation, the rare neurological disease report, titled ‘Out of the Shadows’,…PSPA Admin12th November 2020
Information & Support PSPA awarded funding for delivery against Scotland’s Neurological Care and Support Framework PSPA is delighted to have successfully bid for a round 1 funded project for delivery…PSPA Admin16th October 2020
Research Research shows neuroinflammation and tau co-localise in PSP New research at the University of Cambridge with PSPA funding has shown inflammation in the…PSPA Admin22nd September 2020
BlogFundraising My London Marathon Experience: It’s great being part of #TeamPSPA My wonderful Auntie, Moira Catherall passed away in 2018 after experiencing many challenges with PSP.…PSPA Admin8th September 2020
BlogCommunicationsFundraising My London Marathon experience: why, how and when. In December 2012 I turned 40 and started considering what challenges I could set myself.…PSPA Admin2nd September 2020
Research Durham University study into use of prism glasses Researchers at Durham University are looking for people living with PSP to help them with…PSPA Admin17th June 2020
CommunicationsInformation & Support Ask the Helpline – Live Q&A Session On Wednesday 10 June, to help mark Carers Week, PSPA is launching the first of…PSPA Admin4th June 2020
CommunicationsInformation & SupportResearchVolunteering PSPA Funded Research Update Since the lockdown began, many medical researchers who also usually hold clinical posts such as…PSPA Admin20th May 2020