Talbot Underwriting selects PSPA to be their 2021-22 charity partner CommunicationsFundraising Talbot Underwriting selects PSPA to be their 2021-22 charity partner We are pleased to announce Talbot Underwriting has selected PSPA to be their charity partner…PSPA Admin14th January 2021
Ellie’s Half Marathon Challenge for PSPA Fundraising Ellie’s Half Marathon Challenge for PSPA An Essex-based woman is training to take part in a half marathon to raise awareness…PSPA Admin8th January 2021
Research identifies genetic variant which determines speed of PSP progression Research Research identifies genetic variant which determines speed of PSP progression New research has identified a genetic variant which determines how quickly the neurodegenerative condition Progressive…PSPA Admin18th December 2020
Participants wanted for study looking into mechanisms of PSP Research Participants wanted for study looking into mechanisms of PSP Participants are being sort for a research study looking into the mechanisms of PSP and to…PSPA Admin13th November 2020
New report to bring rare diseases ‘Out of the Shadows’ CommunicationsResearch New report to bring rare diseases ‘Out of the Shadows’ Following nine months of consultation, the rare neurological disease report, titled ‘Out of the Shadows’,…PSPA Admin12th November 2020
PSPA awarded funding for delivery against Scotland’s Neurological Care and Support Framework Information & Support PSPA awarded funding for delivery against Scotland’s Neurological Care and Support Framework PSPA is delighted to have successfully bid for a round 1 funded project for delivery…PSPA Admin16th October 2020
Research shows neuroinflammation and tau co-localise in PSP Research Research shows neuroinflammation and tau co-localise in PSP New research at the University of Cambridge with PSPA funding has shown inflammation in the…PSPA Admin22nd September 2020
My London Marathon Experience: It’s great being part of #TeamPSPA BlogFundraising My London Marathon Experience: It’s great being part of #TeamPSPA My wonderful Auntie, Moira Catherall passed away in 2018 after experiencing many challenges with PSP.…PSPA Admin8th September 2020
My London Marathon experience: why, how and when. BlogCommunicationsFundraising My London Marathon experience: why, how and when. In December 2012 I turned 40 and started considering what challenges I could set myself.…PSPA Admin2nd September 2020
Durham University study into use of prism glasses Research Durham University study into use of prism glasses Researchers at Durham University are looking for people living with PSP to help them with…PSPA Admin17th June 2020
Ask the Helpline – Live Q&A Session CommunicationsInformation & Support Ask the Helpline – Live Q&A Session On Wednesday 10 June, to help mark Carers Week, PSPA is launching the first of…PSPA Admin4th June 2020
PSPA Funded Research Update CommunicationsInformation & SupportResearchVolunteering PSPA Funded Research Update Since the lockdown began, many medical researchers who also usually hold clinical posts such as…PSPA Admin20th May 2020
OxQuip – Oxford study of Quantification in Parkinsonism Research OxQuip – Oxford study of Quantification in Parkinsonism OxQuip are looking for patients with Progressive Supranuclear Palsy to participate in a research study.…PSPA Admin4th February 2020
Initial findings from the PROSPECT Study CommunicationsFundraisingInformation & SupportResearchVolunteering Initial findings from the PROSPECT Study Research estimates that up to 10,000 people may be living with PSP & CBD in…PSPA Admin20th December 2019
PASSPORT Study Discontinued CommunicationsResearch PASSPORT Study Discontinued At the end of last week pharmaceutical company Biogen announced they would be discontinuing their…PSPA Admin18th December 2019
25 years of PSPA – interview with our founder Michael Koe CommunicationsFundraisingInformation & SupportResearchVolunteering 25 years of PSPA – interview with our founder Michael Koe “We were so upset that no one seemed to know or care about PSP.” When…PSPA Admin5th April 2019
Research north of the border: Dr Diane Swallow BlogResearch Research north of the border: Dr Diane Swallow Neurology registrar Dr Diane Swallow has recently embarked on a three year research fellowship in…Geek Design Admin5th June 2018
Sara Koe Research Fellowship – Dr Edwin Jabbari BlogResearch Sara Koe Research Fellowship – Dr Edwin Jabbari Dr Edwin Jabbari has recently finishing his general medical training. To kick start his career…Geek Design Admin5th June 2018
Working on Prof James Rowe’s PSPA -funded project – Patricia Vazquez Rodriguez Blog Working on Prof James Rowe’s PSPA -funded project – Patricia Vazquez Rodriguez Patricia Vazquez Rodriguez is working on Prof James Rowe’s PSPA -funded project, carrying out special brain…Geek Design Admin5th June 2018