This week the findings of a study looking into the lived experience of people living with PSP and carers, has been published by the National Library of Medicine.
The collaborative study was conducted by PSPA, Cure PSP, UCB and Hanover Medical Services over six months, and across seven countries. As well as mapping peoples’ clinical and emotional experience of PSP, the study also highlights the importance of relationships between healthcare professionals and support organisations, as well as support for care givers.
The results illustrate a coordinated effort from all stakeholders is required to address ongoing needs and challenges within PSP.
PSPA will utilise these findings, alongside the results of our recent survey, to continue to develop and deliver services to support families and healthcare professionals.
You can read the paper in full, on the National Library of Medicine’s website.