There are thousands of people around the UK caring for loved ones living with PSP & CBD.
We share a few of their stories …
John's Story
“I wouldn’t have known about half the services available if it weren’t for PSPA’s Carer Support Groups. They were there to point me in the right direction, and now that I’m more used to the routine, I’m able to give back by sharing my own insights too.”
Violet's Story
“Even though I’m completely exhausted, it feels like I have no choice but to continue my daily trips, sit by his bed, and wait for a carer to become available.”
Kate's Story
“I spent large amounts of time searching online about PSP & CBD. I was keen to learn as much as I could about the conditions and the support available. It was through this research that I learned about CHC Funding.”
Maggie's Story
“I don’t know what I would do without the support I’ve had from PSPA and the carers I’ve met. Their insight, encouragement and shared experience have been truly invaluable.”
Mike's Story
“Before Jane’s diagnosis, we were quite an outdoorsy couple, often loving a long walk together. So, trips out exploring, although not as frequent or far away as before, are quite important to us.”
Jason's story
“Get in touch with PSPA. The help and information you receive from them will prepare you much better for the future ahead.”
Liz's Story
“Attending PSPA Support Groups was very valuable. We learned a lot about the progression of PSP as well as being connected to other families affected.”
Steph's story
“It really feels like PSPA listened to carers’ needs and helps them to get a break from the relentless nature of unpaid caring.”
A Family's Story
“The diagnosis was not explained at all. They just told us to get in touch with PSPA and that they’d see us in six months.”
PSPA is the only UK charity dedicated to creating a better future for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We work to ensure the 10,000 people living with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate. We rely entirely on voluntary donations. PSPA is a registered charity in England and Wales (1037087) and in Scotland (SC041199).
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