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Helpline and Information Service

Learn how our Helpline can support you, your family and healthcare professionals involved in your care.

Our Helpline and information service provides free, confidential support over the phone and by email.

Our Helpline is open Monday to Friday, 9am to 9pm, and is manned by a team of trained Helpline Care Navigators who provide dedicated support for your area. You can contact the Helpline at:

Email: helpline@pspassociation.org.uk
Telephone: 0300 0110 122

Alternatively, complete our Join Us form below and a member of the team will get in touch with you.

HOW WE CAN HELP

PSPA is the UK’s leading centre of information, knowledge and support for people living with PSP & CBD and their families.

Our people have experience and knowledge to help individuals understand the conditions and support available to them.

Our Helpline and Information Service can provide a listening ear for you to voice your thoughts, feelings and concerns to. We can also sign post you to useful information and help you to navigate your local health and social care services and provide referrals to non-means tested benefit applications via the Department of Work and Pensions (DWP) home visiting service.

In addition, we can work with you to support Blue Badge and Continuing Healthcare funding applications.

PSPA SUPPORT SERVICES

SUPPORTING YOUR CARE

As well as helping you and your family after a diagnosis or during a challenging time, our Helpline can also support healthcare professionals involved in your care.

We can provide tailored information for different professionals, helping them to better understand your condition and how they can support you.

Whether the professionals work at local GP surgery, community team, hospital unit or care home, our Helpline team can also deliver education sessions, in-person or online.

Requests for information or education sessions can be made by yourselves or directly by the healthcare professionals supporting you.

RESOURCES FOR PROFESSIONALS

“PSPA’s Helpline became a real lifeline to us. They helped me to navigate the local health and social care system following my brother’s diagnosis. They also provided me with a Support Grant to purchase a battery pack for Stephen’s wheelchair to help me get him out and about easily. In addition, the team provided training to the staff to ensure they fully understand CBD and provide the best care for his changing needs.” Kathleen

KATHLEEN'S STORY
MATTHEW'S STORY

CONTACT US

If you would like to speak to someone about living with PSP or CBD and find out more about the support available to you, please get in touch using the details below.

Alternatively, get support from your peers in our Online Forum, HealthUnlocked.

Telephone: 0300 0110 122

Email: helpline@pspassociation.org.uk

Online Forum

Shared experiences and support.

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PSPA Publications

Information sheets and detailed guides to help you with your journey with PSP or CBD.

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For people living with PSP & CBD

Information to help you live the best life possible with PSP & CBD

Find out more