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PSPA Support Grants

PSPA support grants aim to help improve the quality of life for people who are living with or are affected by PSP & CBD.

 

 

HOW TO APPLY FOR A SUPPORT GRANT

Please ask a health or social care professional involved in your care to help complete the PSPA Support Grant application form. Incomplete application forms will result in the application being delayed whilst further information is requested.

PSPA support grants are provided to make a difference to those living with or affected by PSP & CBD and to help improve quality of life. Applicant must be a resident in the UK.

Funding is limited and applications will be assessed based on the impact that the item or service would have on the person living with PSP, CBD and/or their carer. We are only able to provide a grant to an individual once a year. Please note that the maximum amount for a support grant is currently £300, we consider value for money and the impact of the grant and may award any amount up to the maximum. Please contact PSPA helpline on 0300 0110 122 or helpline@pspassociation.org.uk if you have any questions.

EXCLUSIONS

PSPA will not provide a grant in the following instances:

  • Retrospective funding
  • Emergency healthcare needs
  • Funeral costs
  • Repayment of debt
  • Legal fees
  • Daily living costs (including utilities).

We aim to process applications within 5 working days. Once a decision has been made, the applicant and the referring HSCP will be informed.

We require the following information when applying for funding before we can consider your application:

  • Completed application form. Incomplete application forms will result in the application being delayed whilst further information is requested.
  • All applications require assessment by an appropriate HSCP, i.e. an assessment by an Occupational Therapist recommending the exact make and model for mobility equipment such as wheelchairs, walking aids and specialist seating or a Speech and Language Therapist for communication aids.
  • Quotation with the cost of the item.
  • Confirmation that funding is not available from statutory sources.

If you would like a hard copy of this form, please contact the Helpline at: helpline@pspassociation.org.uk

COMPLETE THE SUPPORT GRANT APPLICATION FORM

Read personal stories below from Support Grant recipients about how they found the process and what aids they used the grant to buy.

Frequently Asked Questions

What is a PSPA Support Grant?

A PSPA Support Grant is a one-off payment of up to £300 towards improving the quality of life for people living with PSP or CBD, their carers and families. It can help fund equipment or services that make everyday life easier and more comfortable.

Who can apply for a PSPA Support Grant?

Support Grants are available to people living with Progressive Supranuclear Palsy and Corticobasal Degeneration, as well as their carers and family members. You must be referred by a health or social care professional involved in your care.

What can the Support Grants be used for?

Support Grants can be used for accessing or purchasing equipment or services that improve quality of life, including mobility aids, communication aids, respite care, counselling, exercise classes, adapted equipment, transport to support groups, or hobby items. Applications are assessed based on the impact the item or service will have on the person affected by PSP or CBD.

What costs are not covered by the Support Grant?

PSPA Support Grants cannot be used for retrospective costs, emergency healthcare needs, funeral costs, utility bills, debt repayment, legal fees, or general daily living costs.

How often can I apply for a Support Grant?

You are eligible to receive one Support Grant per year. If you need further support in the future, you can apply again the following year.

How do I apply for a PSPA Support Grant?

If the support grant is needed for a particular piece of equipment or service related to your condition, you will need a health or social care professional involved in your care to complete the application form. For wellbeing therapies and other support needs, you can contact the Helpline directly to apply for a support grant. 

The completed form can then be sent to PSPA by email to helpline@pspassociation.org.uk or by post to PSPA, 3rd Floor, Margaret Powell House, 415a Midsummer Boulevard, Milton Keynes, MK9 3BN. Your application will be processed within around five working days.

How are Support Grant applications assessed?

Applications are assessed based on how the requested equipment or service will improve the quality of life of the person living with PSP or CBD, or their carer. Funding is limited, so grants are awarded on an individual basis.

Celia's story

Celia Newsham, who is living with a diagnosis of PSP, successfully applied for a PSPA Support Grant to help pay for a mobility scooter so she can get out and about in her village.

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Ela's story

Maintaining grandma’s quality of life is really important so the grant for clothing will really help.”

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Michael's story

“You could see on her face how happy mum was to see her grandchildren for the first time since March.”

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