The support grants can provide a one-off payment of up to £300 to help provide an item or service. Applications will be assessed on the impact the item or service identified would have on the person living with PSP or CBD, or their carer.
Please note that funding is limited; we can only provide a grant to each individual once a year.
Examples of items and services our support grant could fund include:
- A communication aid
- Respite care
- A mobility aid
- Counselling sessions
We are not able to fund:
- Retrospective requests or services
- Emergency healthcare needs
- Funeral costs
- Utility bills
- Repayment of debt
- Legal fees
- Daily living costs
How to apply
Applicants must gain a referral for a grant from a health or social care professional involved in the care of the person affected by PSP or CBD or their carer.
The Support Grant application form, guidance and appendix can be downloaded here. Please note that incomplete application forms will result in the application being delayed whilst further information is requested. Please note we do not fund retrospective requests.
The completed application form should be returned to PSPA, 3rd Floor, Margaret Powell House, 415a Midsummer Boulevard, Milton Keynes, MK9 3BN or emailed to helpline@pspassociation.org.uk
We aim to process applications within five working days. Once a decision has been made, the applicant and the healthcare professional will be informed.
Read personal stories below from Support Grant recipients about how they found the process and what aids they used the grant to buy.
Frequently Asked Questions
What is a PSPA Support Grant?
A PSPA Support Grant is a one-off payment of up to £300 towards improving the quality of life for people living with PSP or CBD, their carers and families. It can help fund equipment or services that make everyday life easier and more comfortable.
Who can apply for a PSPA Support Grant?
Support Grants are available to people living with Progressive Supranuclear Palsy and Corticobasal Degeneration, as well as their carers and family members. You must be referred by a health or social care professional involved in your care.
What can the Support Grants be used for?
Support Grants can be used for accessing or purchasing equipment or services that improve quality of life, including mobility aids, communication aids, respite care, counselling, exercise classes, adapted equipment, transport to support groups, or hobby items. Applications are assessed based on the impact the item or service will have on the person affected by PSP or CBD.
What costs are not covered by the Support Grant?
PSPA Support Grants cannot be used for retrospective costs, emergency healthcare needs, funeral costs, utility bills, debt repayment, legal fees, or general daily living costs.
How often can I apply for a Support Grant?
You are eligible to receive one Support Grant per year. If you need further support in the future, you can apply again the following year.
How do I apply for a PSPA Support Grant?
If the support grant is needed for a particular piece of equipment or service related to your condition, you will need a health or social care professional involved in your care to complete the application form. For wellbeing therapies and other support needs, you can contact the Helpline directly to apply for a support grant.
The completed form can then be sent to PSPA by email to helpline@pspassociation.org.uk or by post to PSPA, 3rd Floor, Margaret Powell House, 415a Midsummer Boulevard, Milton Keynes, MK9 3BN. Your application will be processed within around five working days.
How are Support Grant applications assessed?
Applications are assessed based on how the requested equipment or service will improve the quality of life of the person living with PSP or CBD, or their carer. Funding is limited, so grants are awarded on an individual basis.
