Help raise awareness of the 10,000 people living with PSP & CBD in the UK by getting involved in our campaign.
Recent research indicates there could be up to 10,000 people living with PSP & CBD in the UK at one time.
91% of our supporters had not heard of either condition before their diagnosis, so PSPA is launching the 10,000 Voices campaign to help raise awareness of PSP & CBD, with healthcare professionals and the general public.
Through the campaign, PSPA aims to ensure:
- more people can spot the signs and symptoms of PSP & CBD
- diagnosis can be made earlier
- those diagnosed are referred to appropriate support services.
Help 10,000 Voices be heard
Launching 28 February, Rare Disease Day, PSPA will be calling on supporters to get involved in the 10,000 Voices campaign.
You can do this by lobbying your local MP, MSP or MS, sharing Red Flag posters with your local GP Practice and, sharing your experience of PSP & CBD with us.
Write to your MP, MSP or MS
Lobbying your local Member of Parliament can have a huge impact on making them more aware of PSP & CBD, the symptoms and the impact on day to day life, as well as supporting PSPA’s work in the future.
The best way to ensure your request for help stands out is by writing a personal message to your MP.
Whether you are planning to write a letter or send an email, these top tips will help you to create a lasting impression when contacting your local MP:
- Check who your local MP is https://members.parliament.uk/
- Keep your message brief
- Make it personal by explaining your connection to PSP & CBD
- Be clear about what you want them to do
- Include your postcode
- Follow it up
- Share any MP responses with us at communications@pspsassociation.org.uk
If you are still unsure where to start, download our template letter.
Help to Red Flag the symptoms of PSP & CBD
To help raise awareness of the signs and symptoms of PSP & CBD, with healthcare professionals and your family and friends, please share our information as widely as possible. You can do this by
- Take Red Flag posters with you to your next GP appointment
- Share our ‘It’s not Parkinson’s video with your friends, family and local GP surgery
- Use one of our two pledge cards to show your support on your Facebook or Twitter profile (and tag us in @PSPAssociation)
- Share your experience of PSP & CBD here.
