We were shocked and disappointed to learn of the allegations made about Raynor and Moth Winn by The Observer this weekend. We know the article has taken everyone by surprise and has made people affected by Corticobasal Degeneration (CBD) and Progressive Supranuclear Palsy (PSP) feel angry, let down and eager for clarity.
Raynor and Moth worked with many individuals and organisations since their first book was published, including PSPA. We received the family’s need for support, and desire to raise awareness of PSP & CBD in good faith. Whilst we are thankful for the awareness opportunities their story has provided; too many questions currently remain unanswered. Therefore, we have made the decision to terminate our relationship with the family.
In the meantime, we want to reassure supporters that any fundraising Raynor and Moth conducted for PSPA was via official platforms such as JustGiving and monies raised have been received in full by the charity.
Our Helpline is here to support you by providing a listening ear should you wish to talk.
