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At the beginning of August PSPA sent you a copy of the 2022 patient survey.  The survey really  important for helping PSPA raise awareness, campaign for improved diagnosis and care and to improve our own services.  The data provided helps us to better understand your experiences and then to get others to understand them too.

We are aiming to get enough surveys returned so we have reliable and robust data, which will be so much more influential in helping to raise money and improve services for people affected by PSP & CBD.  Lots of people have completed the survey already but we need more people to do it, so are now sending a gentle reminder for people to complete the survey in the hope we can get enough returned so that people will listen to what we have to say.

You do not have to fill in this survey and taking part is entirely voluntary. However, by doing so, you are making a valuable contribution to our work and enabling us to ensure our services meet the needs of those affected by PSP & CBD.

I can’t find my survey?

If you want a new copy of the survey, please contact PSPA via email or phone on or phone 0300 0110 122.

Returning the survey?

Please return it to us in the freepost envelope provided (no stamp required) we have extended the deadline to the end of September.

If you have any questions about the survey, or would like help to complete it, please email or phone 0300 0110 122.

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