Wear Ed’s Lace to raise awareness of PSP & CBD CommunicationsFundraisingInformation & Support Wear Ed’s Lace to raise awareness of PSP & CBD Wear Ed's Lace to raise awareness of PSP & CBD.PSPA Admin23rd May 2022
Share your story for Rare Disease Day 2022 CommunicationsFundraisingInformation & Support Share your story for Rare Disease Day 2022 This year, Rare Disease Day is taking place on 28 February. The themes of the…PSPA Admin7th February 2022
Make Some Noise for people living with PSP & CBD CommunicationsFundraisingInformation & Support Make Some Noise for people living with PSP & CBD We are pleased to confirm PSPA has been selected to be part of the 2021…PSPA Admin30th September 2021
PSPA Podcast launches with support from Pavers CommunicationsInformation & Support PSPA Podcast launches with support from Pavers PSPA has launched a podcast for carers thank to the kind support of The Pavers…PSPA Admin10th June 2021
Funding partnership with SpeakUnique Information & Support Funding partnership with SpeakUnique PSPA are excited to be offering funding for voice banking through a partnership with SpeakUnique.…PSPA Admin15th April 2021
PSPA welcomes a new Chair of Trustees CommunicationsInformation & Support PSPA welcomes a new Chair of Trustees PSPA is pleased to be welcoming a new Chair to lead its Board of Trustees.…PSPA Admin31st March 2021
Helping the 10,000 people living with PSP & CBD be heard CommunicationsInformation & Support Helping the 10,000 people living with PSP & CBD be heard This Rare Disease Day, 28 February, PSPA is launching a new campaign to help people…PSPA Admin28th February 2021
PSPA awarded funding for delivery against Scotland’s Neurological Care and Support Framework Information & Support PSPA awarded funding for delivery against Scotland’s Neurological Care and Support Framework PSPA is delighted to have successfully bid for a round 1 funded project for delivery…PSPA Admin16th October 2020
Ask the Helpline – Live Q&A Session CommunicationsInformation & Support Ask the Helpline – Live Q&A Session On Wednesday 10 June, to help mark Carers Week, PSPA is launching the first of…PSPA Admin4th June 2020
PSPA Funded Research Update CommunicationsInformation & SupportResearchVolunteering PSPA Funded Research Update Since the lockdown began, many medical researchers who also usually hold clinical posts such as…PSPA Admin20th May 2020
Initial findings from the PROSPECT Study CommunicationsFundraisingInformation & SupportResearchVolunteering Initial findings from the PROSPECT Study Research estimates that up to 10,000 people may be living with PSP & CBD in…PSPA Admin20th December 2019
25 years of PSPA – interview with our founder Michael Koe CommunicationsFundraisingInformation & SupportResearchVolunteering 25 years of PSPA – interview with our founder Michael Koe “We were so upset that no one seemed to know or care about PSP.” When…PSPA Admin5th April 2019