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PSPA is delighted to have successfully bid for a round 1 funded project for delivery against Scotland’s Neurological Care and Support Framework.

This achievement was announced on Sunday 10 October and will enable PSPA to continue our work in Scotland, raising awareness of PSP & CBD and how PSPA can help, whilst promoting best practice in care and support.

To deliver the project, we will collaborate with colleagues in community and hospital settings in order to gather information across the 14 health board regions in Scotland, and use this to inform and start to build the complex picture of the route to support for everyone affected by PSP & CBD.

As we do this, will use the opportunity to signpost onto PSPA’s support and information services, to both people living with PSP & CBD and their families, as well as healthcare professionals themselves.

This project will assist our work establishing earlier diagnosis for PSP & CBD as well to ensuring people are able to access the right care, when they need it.

Andrew Symons, PSPA CEO said “The Neurological Care and Support Framework Funding will allow us to map provision for PSP & CBD in Scotland, simultaneously highlighting the information and support that we can offer from PSPA. This will contribute to the aim of earlier diagnosis of these rare conditions and reduce the time spent by people in the wrong part of the system with the result they can benefit from the provisions of the Framework as soon as their disease is recognised.”

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