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Share your story for Rare Disease Day 2022

This year, Rare Disease Day is taking place on 28 February.

The themes of the awareness day include sharing personal stories about rare diseases, across the globe.

To support the international awareness day, PSPA aims to share 10 stories in 10 hours via our website, social media and podcast.

If you would like to help raise awareness of PSP & CBD on Rare Disease Day by sharing your experience, please email Helen at

Celebrating PSPA Volunteers

This Volunteers Week, 1 to 7 June 2022, we want…

Wear Ed’s Lace to…

Wear Ed’s Lace to raise awareness of PSP & CBD.

Check out our Jubilee…

Celebrate the Queen’s Jubilee whilst raising awareness of PSP & CBD with a PSPA Jubilee Tea Party

PSPA invites applications for…

Learn more about the PSPA Small Research Grants and how to apply.