Helpline: phone0300 0110 122 | Online Community

Ellie’s Half Marathon Challenge for PSPA

An Essex-based woman is training to take part in a half marathon to raise awareness of a rare brain disease called Progressive Supranuclear Palsy (PSP).

Elloise Charles, also known as Ellie, decided to take part in the Royal Parks Half Marathon on 11 April for her father, Alan Charles, was diagnosed with the disease last year.

Following years of misdiagnosis and experiencing symptoms such as falling backwards, swallowing difficulties and eye sight problems, Ellie’s dad received his PSP diagnosis in November 2020.

Since PSP is not well known, Ellie decided to take on the half marathon challenge not only for her dad, but to raise awareness of the disease and fundraise for PSPA.

Ellie said: “I decided to take on the Royal Parks Half Marathon after my dad received his PSP diagnosis. Little is known about the disease and the heartbreaking part is that there is no cure or treatment, and day by day we are seeing my dad’s health deteriorate.

“My half marathon training has already begun and as a novice runner, I am already finding it challenging. But I will keep persevering as I want to create as much awareness of PSP as I can and I will be sharing training updates and my family’s experience of PSP on my Instagram @cure_psp.”

If you would like to join Ellie and #TeamPSPA for the Royal Parks Half Marathon on 11 April, you can register your place for just £20 when raising £450 for PSPA, at

Wear Ed’s Lace to…

Wear Ed’s Lace to raise awareness of PSP & CBD.

Check out our Jubilee…

Celebrate the Queen’s Jubilee whilst raising awareness of PSP & CBD with a PSPA Jubilee Tea Party

PSPA invites applications for…

Learn more about the PSPA Small Research Grants and how to apply.

Give a Voice Raffle

Play in the Give A Voice raffle to be in with a chance of winning £500!