BlogCommunicationsFundraising Andrew’s Walk for Lindsay Andrew Coney from Clitheroe, Lancashire, is stepping up awareness in his local area with a…PSPA Admin25th May 2023
CommunicationsInformation & Support PSPA Survey shows 60% of people living with PSP & CBD are initially misdiagnosed The PSPA survey of people living with PSP & CBD highlights diagnosis of the condition…PSPA Admin11th April 2023
CommunicationsFundraising Rob’s epic drive to raise awareness of PSP PSPA supporter Rob Hutchings will be beginning an epic drive from John O'Groats to Lands…PSPA Admin3rd April 2023
CommunicationsInformation & Support ‘Ask the experts’ webinars for healthcare professionals We are pleased to have developed a series of 'Ask the expert' webinars with members…PSPA Admin28th March 2023
BlogCommunications Small Research Grants update! Thanks to the kind donations of our supporters, who raised more than £10,000 in our…Alex2nd February 2023
BlogCommunicationsFundraising PSPA phone lines On Friday, 27 January, we will be moving over to a new telephone provider. We…Alex26th January 2023
CommunicationsInformation & SupportVolunteering Volunteer Support Group Coordinators wanted! During 2023, PSPA would like to extend our support across the UK, so all families…Alex6th January 2023
CommunicationsInformation & SupportResearch Registration now open for the Research Information Day We are pleased to confirm registration for the Research Information Day is now open! The…Alex12th December 2022
CommunicationsInformation & Support Christmas Opening Times Our office and Helpline hours will change slightly over the Christmas period. To ensure you…Alex7th December 2022
CommunicationsInformation & Support Ed’s Lace Christmas Tree Challenge The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…PSPA Admin10th November 2022
CommunicationsInformation & Support PSPA Matters hitting your doormats this November The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…PSPA Admin1st November 2022
CommunicationsFundraising “I’m running the London Marathon for PSPA because of the support we’ve received” A big cheer and a massive thank you to Dr Jules Cuthbert, one of our…PSPA Admin29th September 2022
CommunicationsInformation & Support PSPA Open Day, 28 September On Wednesday 28 September, we will be pleased to welcome supporters wide and far to…PSPA Admin26th September 2022
CommunicationsInformation & SupportResearch Survey for people living with PSP & CBD At the beginning of August PSPA sent you a copy of the 2022 patient survey. …PSPA Admin7th September 2022
CommunicationsFundraising Family and friends fundraising for Shirley A group of family and friends in Kent are busy fundraising for PSPA in support…PSPA Admin11th August 2022
CommunicationsFundraising Amy’s Robin Hood Half Marathon Challenge for her grandad "My grandad was everything to me, the bond we had was so special. I have…PSPA Admin9th August 2022
CommunicationsFundraising Fiona’s Half Marathon Challenge in memory of her dad "I am running for hope. I am choosing to hope that in the future, through…PSPA Admin3rd August 2022
CommunicationsVolunteering Celebrating PSPA Volunteers This Volunteers Week, 1 to 7 June 2022, we want to thank and celebrate all…PSPA Admin1st June 2022
CommunicationsFundraisingInformation & Support Wear Ed’s Lace to raise awareness of PSP & CBD Wear Ed's Lace to raise awareness of PSP & CBD.PSPA Admin23rd May 2022
CommunicationsFundraisingVolunteering Check out our Jubilee Tea Party Pack! Celebrate the Queen's Jubilee whilst raising awareness of PSP & CBD with a PSPA Jubilee…PSPA Admin6th May 2022