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Communications Research

New report to bring rare diseases ‘Out of the Shadows’

Following nine months of consultation, the rare neurological disease report, titled ‘Out of the Shadows’,…

PSPA Admin12th November 2020

Blog Communications Fundraising

My London Marathon experience: why, how and when.

In December 2012 I turned 40 and started considering what challenges I could set myself.…

PSPA Admin2nd September 2020

Communications Information & Support

Ask the Helpline – Live Q&A Session

On Wednesday 10 June, to help mark Carers Week, PSPA is launching the first of…

PSPA Admin4th June 2020

Communications Information & Support Research Volunteering

PSPA Funded Research Update

Since the lockdown began, many medical researchers who also usually hold clinical posts such as…

PSPA Admin20th May 2020

Communications Fundraising Information & Support Research Volunteering

Initial findings from the PROSPECT Study

Research estimates that up to 10,000 people may be living with PSP & CBD in…

PSPA Admin20th December 2019

Communications Research

PASSPORT Study Discontinued

At the end of last week pharmaceutical company Biogen announced they would be discontinuing their…

PSPA Admin18th December 2019

Communications Fundraising Information & Support Research Volunteering

25 years of PSPA – interview with our founder Michael Koe

“We were so upset that no one seemed to know or care about PSP.” When…

PSPA Admin5th April 2019

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PSPA is the only UK charity dedicated to creating a better future for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We work to ensure the 10,000 people living with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate. We rely entirely on voluntary donations. PSPA is a registered charity in England and Wales (1037087) and in Scotland (SC041199).