CommunicationsFundraisingResearch PSPA invites applications for small research projects Learn more about the PSPA Small Research Grants and how to apply.PSPA Admin28th April 2022
CommunicationsFundraisingInformation & Support Share your story for Rare Disease Day 2022 This year, Rare Disease Day is taking place on 28 February. The themes of the…PSPA Admin7th February 2022
BlogCommunicationsFundraisingVolunteering Your 10,000 Voices Awards Winners At the end of the 2021 Awareness Week we launched our first 10,000 Voices Awards…PSPA Admin21st December 2021
CommunicationsFundraising Mike’s Awareness Raising Santa Dash at Brands Hatch On Wednesday 1 December, Mike Thomas will be taking a drive down memory lane at…PSPA Admin30th November 2021
CommunicationsInformation & Support PSPA welcomes a new CEO Everyone at PSPA is extremely pleased to be welcoming our new CEO, Rebecca Packwood, to…PSPA Admin1st November 2021
CommunicationsFundraisingInformation & Support Make Some Noise for people living with PSP & CBD We are pleased to confirm PSPA has been selected to be part of the 2021…PSPA Admin30th September 2021
CommunicationsResearch Study in dynamic networks in PSP Earlier this week, findings from a study in dynamic networks in PSP were published in…PSPA Admin22nd July 2021
CommunicationsFundraising Lindsey’s 24 hour walk from Weymouth to Exmouth Lindsey Aldington from Exmouth is taking on a 24-hour walking challenge on 10 September for…PSPA Admin28th June 2021
CommunicationsInformation & Support PSPA Podcast launches with support from Pavers PSPA has launched a podcast for carers thank to the kind support of The Pavers…PSPA Admin10th June 2021
CommunicationsFundraising Julie’s 10,000ft sky dive for PSPA PSPA Supporter, Julie Morrish is gearing up for a 10,000ft skydive this July to help…PSPA Admin25th May 2021
CommunicationsInformation & Support PSPA welcomes a new Chair of Trustees PSPA is pleased to be welcoming a new Chair to lead its Board of Trustees.…PSPA Admin31st March 2021
CommunicationsInformation & Support Helping the 10,000 people living with PSP & CBD be heard This Rare Disease Day, 28 February, PSPA is launching a new campaign to help people…PSPA Admin28th February 2021
CommunicationsResearch Take part in a study to improve Google Assistant A team of researchers is currently looking for people with speech difficulties to take part…PSPA Admin19th February 2021
CommunicationsFundraising Ed’s Three Peaks Challenge to raise awareness of CBD Ed Warth is currently training to climb the Three Peaks this August to raise awareness…PSPA Admin15th February 2021
CommunicationsFundraising Talbot Underwriting selects PSPA to be their 2021-22 charity partner We are pleased to announce Talbot Underwriting has selected PSPA to be their charity partner…PSPA Admin14th January 2021
CommunicationsResearch New report to bring rare diseases ‘Out of the Shadows’ Following nine months of consultation, the rare neurological disease report, titled ‘Out of the Shadows’,…PSPA Admin12th November 2020
BlogCommunicationsFundraising My London Marathon experience: why, how and when. In December 2012 I turned 40 and started considering what challenges I could set myself.…PSPA Admin2nd September 2020
CommunicationsInformation & Support Ask the Helpline – Live Q&A Session On Wednesday 10 June, to help mark Carers Week, PSPA is launching the first of…PSPA Admin4th June 2020
CommunicationsInformation & SupportResearchVolunteering PSPA Funded Research Update Since the lockdown began, many medical researchers who also usually hold clinical posts such as…PSPA Admin20th May 2020
CommunicationsFundraisingInformation & SupportResearchVolunteering Initial findings from the PROSPECT Study Research estimates that up to 10,000 people may be living with PSP & CBD in…PSPA Admin20th December 2019