Communications Archives - PSPA

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Blog Communications Information & Support

What does the Budget mean for people living with PSP & CBD?

The Government’s 2025 Budget was an important moment to address the challenges faced by people…

Pooja Pandya10th December 2025

Blog Communications Information & Support

PSPA Helpline – Festive Holiday Opening Hours

We understand the festive season can bring joy and challenges for different people, and we…

Pooja Pandya5th December 2025

Blog Communications Research

Call for Personal Essays on Dementia-related Experiences

The Nature Partner Journals Dementia (NPJ) are looking for essays and perspectives from patients, caregivers,…

Colleen Wren2nd December 2025

Jon Garrard BBC Radio 4 Appeal Presenter

Blog Communications Fundraising Information & Support

PSPA’s BBC Radio 4 Appeal Update – A Big Thanks to All Our Supporters

We are thrilled to share that your generosity and support for our BBC Radio 4…

Pooja Pandya28th November 2025

brain diagram_CBD

Blog Communications Information & Support

Corticobasal Degeneration (CBD) Vs Corticobasal Syndrome (CBS) – Understanding the Difference

Corticobasal Degeneration (CBD) is a rare, progressive neurological condition that causes problems with movement, speech,…

Pooja Pandya24th November 2025

Blog Communications Fundraising

How You Can Make a Difference With Your Festive Purchases

The festive season is nearly upon us. So, here’s your chance to spread joy and…

Pooja Pandya19th November 2025

Blog Communications Fundraising

Our Bauble Appeal Is Live – Dedicate A Bauble For Your Loved One Today

The festive season can feel less bright when a loved one has been diagnosed with…

Pooja Pandya5th November 2025

Communications Information & Support Research

Register to Attend our Free Research Information Day!

Our last Research Information Session Day of 2025, is taking place on Thursday 13 November…

Colleen Wren31st October 2025

Blog Communications Information & Support Research

Ferrer Has Completed Patient Recruitment for PROSPER Study

Spanish pharmaceutical company, Ferrer, have announced they have completed recruitment of 220 patients for the…

Colleen Wren22nd October 2025

Blog Communications Fundraising Research

Listen to Jon Garrard’s Story on BBC Radio 4 – Support PSPA’s Appeal Today

Our BBC Radio 4 Appeal is now live! Thank you to everyone who tuned into…

Colleen Wren19th October 2025

Blog Communications Information & Support

PSP & CBD Guide Now Available to Download in Multiple Languages

Whether you are living with PSP or CBD, or care for someone who has been…

Pooja Pandya10th October 2025

Communications Information & Support Research

Save the Date for Neuro 2026!

PSPA and CurePSP will be partnering again next November to bring the Neuro 2026 Symposium,…

Colleen Wren25th September 2025

Blog Communications Information & Support

PSPA Announce New CEO

We are delighted to announce that Dr James Cusack will become the new CEO of…

Colleen Wren23rd September 2025

Communications Information & Support

Listen to PSPA on the New Episode of the Movers and Shakers Podcast

PSPA’s CEO Rebecca Packwood, and supporter Lisa Rodrigues who lives with CBD, were delighted to…

Colleen Wren20th September 2025

Blog Communications Information & Support

Read the Brand New Edition of PSPA Matters

The brand new edition of PSPA Matters is now available to read! We have another…

Colleen Wren12th September 2025

Communications

New podcast episode! The benefit of movement

Episode three of the PSPA Podcast 2025, has hit the airwaves! In this episode, we…

PSPA Admin2nd September 2025

Research

Communications Research

Amylyx Pharmaceuticals discontinue clinical trial for PSP

This week, Amylyx Pharmaceuticals has made the decision to discontinue their Orion trial of AMX0035…

PSPA Admin28th August 2025

Communications Information & Support Research

Watch our Research Information Day 2 Recordings

We were delighted to hold our second Research Information Day of the year on Thursday…

Colleen Wren28th August 2025

Communications Information & Support

New Masterclass: Falls and Mobility Management in PSP & CBD

Are you a healthcare professional seeking to enhance your expertise in managing falls and mobility…

PSPA Admin7th August 2025

Man talking with microphone

Communications Information & Support Research

Make your Voice Heard in our Patient Survey

We have now launched our 2025 Patient Survey. Everything we do at PSPA is shaped…

Colleen Wren28th July 2025