Register your interest in research

Home » Research » Get involved in Research » Register your interest in research

REGISTER YOUR INTEREST IN RESEARCH

We work closely with researchers across the UK who undertake studies into PSP & CBD.

Studies include the assessment of potential treatments through clinical trials run by pharmaceutical companies, to patient and carer questionnaires, tissue and blood banking, scanning and tests of new technologies.

We recommend that you follow our website and social media pages where new opportunities will be posted.

Unfortunately, we are unable to accept registrations from people outside the UK but one of our international partners may be able to help.

Carla Bancroft, whose husband Bob lived with PSP

“Every small engagement with research programmes made Bob feel he was grasping back a little control from this debilitating condition”

To join our research register, please complete the form below.

Your First Name *

Your Last Name *

Your Email *

Your Telephone number *

Postal code *

Your Address *

Diagnosed?

Date of Diagnosis

Date of Birth

I would like to be included in the Register of Interest in Research Participation

I consent to have my details stored on the PSPA database and passed on to researchers, should a research project become available, and for them to contact me (required)

Communications preferences:

We greatly appreciate your support and would like to keep in contact with you about our news - including stories and information about our supporters, research projects, volunteering & fundraising activities and appeals.

If you are happy to hear from us with these updates, please tell us how you would like to be contacted (you can select more than one method):EmailPostPhone

PSPA will use your personal information only for the purposes for which you have given us consent. We will keep your data confidential and safe, and will never swap or sell it and you can always withdraw your consent at any time by emailing consent@pspassociation.org.uk or calling 01327 322410. You can see our privacy statement at https://pspassociation.org.uk/home/privacy-policy which explains how we collect, store, manage and use your personal information.

You may withdraw your consent at any time:

Call: 01327 322410.
Email: consent@pspassociation.org.uk

For further information on how data provided on this form will be used, please view our Privacy Policy.

PSPA Research Involvement Members (PRIM)

Our patient involvements group

Find out more

PSPA Funded Research

Research we are currently funding

Find out more

Other research projects

Other PSP & CBD research not funded by PSPA

Find out more

Helpline

Helpline: 0300 0110 122

Email the Helpline

Join our online forum

Share information and experiences in HealthUnlocked

Donate Join PSPA

Quick Links

Home
About us
Research
Events List
News
Have feedback?

Fundraising
Information & Support
Get Involved
Shop
Contact us

Let’s get social

#TeamPSP

Donate Join PSPA

PSPA is the only UK charity dedicated to creating a better future for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We work to ensure the 10,000 people living with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate. We rely entirely on voluntary donations. PSPA is a registered charity in England and Wales (1037087) and in Scotland (SC041199).