‘Ask the experts’ webinars for healthcare professionals CommunicationsInformation & Support ‘Ask the experts’ webinars for healthcare professionals We are pleased to have developed a series of 'Ask the expert' webinars with members…PSPA Admin28th March 2023
Small Research Grants update! BlogCommunications Small Research Grants update! Thanks to the kind donations of our supporters, who raised more than £10,000 in our…PSPA Admin2nd February 2023
PSPA phone lines BlogCommunicationsFundraising PSPA phone lines On Friday, 27 January, we will be moving over to a new telephone provider. We…PSPA Admin26th January 2023
Volunteer Support Group Coordinators wanted! CommunicationsInformation & SupportVolunteering Volunteer Support Group Coordinators wanted! During 2023, PSPA would like to extend our support across the UK, so all families…PSPA Admin6th January 2023
Christmas Opening Times CommunicationsInformation & Support Christmas Opening Times Our office and Helpline hours will change slightly over the Christmas period. To ensure you…PSPA Admin7th December 2022
Ed’s Lace Christmas Tree Challenge CommunicationsInformation & Support Ed’s Lace Christmas Tree Challenge The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…PSPA Admin10th November 2022
PSPA Matters hitting your doormats this November CommunicationsInformation & Support PSPA Matters hitting your doormats this November The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…PSPA Admin1st November 2022
“I’m running the London Marathon for PSPA because of the support we’ve received” CommunicationsFundraising “I’m running the London Marathon for PSPA because of the support we’ve received” A big cheer and a massive thank you to Dr Jules Cuthbert, one of our…PSPA Admin29th September 2022
PSPA Open Day, 28 September CommunicationsInformation & Support PSPA Open Day, 28 September On Wednesday 28 September, we will be pleased to welcome supporters wide and far to…PSPA Admin26th September 2022
Survey for people living with PSP & CBD CommunicationsInformation & SupportResearch Survey for people living with PSP & CBD At the beginning of August PSPA sent you a copy of the 2022 patient survey. …PSPA Admin7th September 2022
Family and friends fundraising for Shirley CommunicationsFundraising Family and friends fundraising for Shirley A group of family and friends in Kent are busy fundraising for PSPA in support…PSPA Admin11th August 2022
Amy’s Robin Hood Half Marathon Challenge for her grandad CommunicationsFundraising Amy’s Robin Hood Half Marathon Challenge for her grandad "My grandad was everything to me, the bond we had was so special. I have…PSPA Admin9th August 2022
Fiona’s Half Marathon Challenge in memory of her dad CommunicationsFundraising Fiona’s Half Marathon Challenge in memory of her dad "I am running for hope. I am choosing to hope that in the future, through…PSPA Admin3rd August 2022
Celebrating PSPA Volunteers CommunicationsVolunteering Celebrating PSPA Volunteers This Volunteers Week, 1 to 7 June 2022, we want to thank and celebrate all…PSPA Admin1st June 2022
Wear Ed’s Lace to raise awareness of PSP & CBD CommunicationsFundraisingInformation & Support Wear Ed’s Lace to raise awareness of PSP & CBD Wear Ed's Lace to raise awareness of PSP & CBD.PSPA Admin23rd May 2022
Check out our Jubilee Tea Party Pack! CommunicationsFundraisingVolunteering Check out our Jubilee Tea Party Pack! Celebrate the Queen's Jubilee whilst raising awareness of PSP & CBD with a PSPA Jubilee…PSPA Admin6th May 2022
PSPA invites applications for small research projects CommunicationsFundraisingResearch PSPA invites applications for small research projects Learn more about the PSPA Small Research Grants and how to apply.PSPA Admin28th April 2022
Share your story for Rare Disease Day 2022 CommunicationsFundraisingInformation & Support Share your story for Rare Disease Day 2022 This year, Rare Disease Day is taking place on 28 February. The themes of the…PSPA Admin7th February 2022
Your 10,000 Voices Awards Winners BlogCommunicationsFundraisingVolunteering Your 10,000 Voices Awards Winners At the end of the 2021 Awareness Week we launched our first 10,000 Voices Awards…PSPA Admin21st December 2021
Mike’s Awareness Raising Santa Dash at Brands Hatch CommunicationsFundraising Mike’s Awareness Raising Santa Dash at Brands Hatch On Wednesday 1 December, Mike Thomas will be taking a drive down memory lane at…PSPA Admin30th November 2021