Make your Voice Heard in our Patient Survey CommunicationsInformation & SupportResearch Make your Voice Heard in our Patient Survey We have now launched our 2025 Patient Survey. Everything we do at PSPA is shaped…Colleen Wren28th July 2025
PSPA’s response to The Observer article Communications PSPA’s response to The Observer article We were shocked and disappointed to learn of the allegations made about Raynor and Moth…PSPA Admin7th July 2025
Help #FixCHC this PSP & CBD Awareness Week Communications Help #FixCHC this PSP & CBD Awareness Week Today marks the first day of PSP & CBD Awareness 2025! Continuing our commitment to…PSPA Admin23rd June 2025
Research helps to distinguish PSP from Parkinson’s CommunicationsResearch Research helps to distinguish PSP from Parkinson’s A recent study led by Dr Ed Jabbari and part funded by PSPA, has shown…PSPA Admin20th June 2025
PSPA Podcast, Episode 2: understanding support and care CommunicationsInformation & Support PSPA Podcast, Episode 2: understanding support and care Episode 2 of series 3 of the PSPA Podcast has hit the airwaves! In this…PSPA Admin16th June 2025
Take part in research from home CommunicationsResearch Take part in research from home Researchers at Durham University are looking into how people with Progressive Supranuclear Palsy (PSP) and…PSPA Admin13th June 2025
Register for our Research Information Session CommunicationsResearch Register for our Research Information Session We are pleased to be hosting our third Research Information Session of 2025 on Thursday,…PSPA Admin11th June 2025
2025 Impact Report: How you helped to make 30 years matter Communications 2025 Impact Report: How you helped to make 30 years matter We have published our 2024 Impact Report, highlighting achievements you helped us to reach during…PSPA Admin4th June 2025
Thank you to our volunteers CommunicationsVolunteering Thank you to our volunteers During National Volunteers' Week we want to extend a massive 'thank you' to all of…PSPA Admin2nd June 2025
New funding released to help progress research CommunicationsResearch New funding released to help progress research Today we are excited to be releasing new funding to help progress research into PSP…PSPA Admin24th April 2025
PSPA Awareness Event in Gloucester BlogCommunicationsInformation & Support PSPA Awareness Event in Gloucester We held our first FREE Regional Awareness event to Gloucester in Wednesday, 30 April 2025.…Colleen Wren10th April 2025
Research finds length of gene not linked to PSP or CBD CommunicationsResearch Research finds length of gene not linked to PSP or CBD Recent research has found there is no link between genetic variations (repeat expansions) of C9orf72…PSPA Admin10th April 2025
Small Research Grant funding confirmed for five studies CommunicationsResearch Small Research Grant funding confirmed for five studies We are pleased to confirm funding has been agreed for five new research studies under…PSPA Admin31st March 2025
Series Three of the PSPA Podcast CommunicationsInformation & Support Series Three of the PSPA Podcast The third series of the PSPA Podcast has hit the airwaves this February. In the…PSPA Admin27th February 2025
Volunteer to Help Create a Better Future BlogCommunicationsVolunteering Volunteer to Help Create a Better Future Would you like to help a create a better future for people living with PSP…Colleen Wren6th February 2025
New Carers Support Groups CommunicationsInformation & Support New Carers Support Groups We are excited to announce that we are launching two brand new carers groups this…Colleen Wren2nd January 2025
PSPA Christmas Opening Times CommunicationsInformation & Support PSPA Christmas Opening Times As we come towards the end of the year, we want to keep you up-to-date…PSPA Admin16th December 2024
Research into diagnostic test celebrated International Conference CommunicationsResearch Research into diagnostic test celebrated International Conference Research to help establish a novel diagnostic test for PSP has been celebrated at the…PSPA Admin3rd October 2024
Ferrer advances research into PSP CommunicationsResearch Ferrer advances research into PSP We are excited to learn Ferrer has advanced their research into PSP with a phase…PSPA Admin1st October 2024
SMALL RESEARCH PROJECTS YOU HELPED TO FUND CommunicationsResearch SMALL RESEARCH PROJECTS YOU HELPED TO FUND Thanks to your ongoing support, PSPA was able to fund three Small Research Grants during…PSPA Admin27th September 2024