Raise awareness with our #BeAware Raffle
Today (30 June) we are excited to be launching our #BeAware Raffle! The purpose of…
PSPA Admin30th June 2023
How you can apply for a PSPA Awareness Grant
This PSP & CBD Awareness Week, we are pleased to be launching our new PSP…
PSPA Admin19th June 2023
Help opticians look out for PSP
This PSP & CBD Awareness Week we are launching a new Red Flag poster. Our…
PSPA Admin18th June 2023
PSPA publish a PSP & CBD State of Diagnosis report
PSPA has published a State of Diagnosis report today, following feedback received from our 2022…
PSPA Admin17th June 2023
Save the date for the Neuro 2023 Symposium
This October we are teaming up with CurePSP in the USA to host the Neuro…
PSPA Admin12th June 2023
Carers Guide now available
As part of our activity for Carers Week, we are pleased to be launching a…
PSPA Admin5th June 2023
Andrew’s Walk for Lindsay
Andrew Coney from Clitheroe, Lancashire, is stepping up awareness in his local area with a…
PSPA Admin25th May 2023
PSPA Survey shows 60% of people living with PSP & CBD are initially misdiagnosed
The PSPA survey of people living with PSP & CBD highlights diagnosis of the condition…
PSPA Admin11th April 2023
Rob’s epic drive to raise awareness of PSP
PSPA supporter Rob Hutchings will be beginning an epic drive from John O'Groats to Lands…
PSPA Admin3rd April 2023
‘Ask the experts’ webinars for healthcare professionals
We are pleased to have developed a series of 'Ask the expert' webinars with members…
PSPA Admin28th March 2023
Small Research Grants update!
Thanks to the kind donations of our supporters, who raised more than £10,000 in our…
PSPA Admin2nd February 2023
PSPA phone lines
On Friday, 27 January, we will be moving over to a new telephone provider. We…
PSPA Admin26th January 2023
Volunteer Support Group Coordinators wanted!
During 2023, PSPA would like to extend our support across the UK, so all families…
PSPA Admin6th January 2023
Christmas Opening Times
Our office and Helpline hours will change slightly over the Christmas period. To ensure you…
PSPA Admin7th December 2022
Study looking into lived experiences of PSP
This week the findings of a study looking into the lived experience of people living…
PSPA Admin1st December 2022
Updated PSPA research leaflet now available
Our leaflet, presenting current understanding of PSP & CBD causes and reviewing current research has…
PSPA Admin24th November 2022
Questions wanted for ‘Ask the Expert’ event
PSPA is producing an ‘Ask the Expert’ webinar supported by the multidisciplinary team (MDT) from…
PSPA Admin15th November 2022
Big Band Concert for PSPA
PSPA supporter Marylyn Dodwell-Lees from St Neots and Phil Hammond from Bedford have organised the…
PSPA Admin14th November 2022
Ed’s Lace Christmas Tree Challenge
The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…
PSPA Admin10th November 2022
PSPA Matters hitting your doormats this November
The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…
PSPA Admin1st November 2022
