New Portsmouth Support Group Starting in August Blog New Portsmouth Support Group Starting in August We are excited that a brand new Support Group will be starting in Portsmouth on…Colleen Wren20th August 2025
New Masterclass: Falls and Mobility Management in PSP & CBD CommunicationsInformation & Support New Masterclass: Falls and Mobility Management in PSP & CBD Are you a healthcare professional seeking to enhance your expertise in managing falls and mobility…PSPA Admin7th August 2025
Make your Voice Heard in our Patient Survey CommunicationsInformation & SupportResearch Make your Voice Heard in our Patient Survey We have now launched our 2025 Patient Survey. Everything we do at PSPA is shaped…Colleen Wren28th July 2025
Programme Grants for Applied Research (PGfAR) are Launching Soon BlogInformation & SupportResearch Programme Grants for Applied Research (PGfAR) are Launching Soon The National Institute for Health and Care Research (NIHR) is opening its Programme Grants for…Colleen Wren15th July 2025
PSPA’s response to The Observer article Communications PSPA’s response to The Observer article We were shocked and disappointed to learn of the allegations made about Raynor and Moth…PSPA Admin7th July 2025
Help #FixCHC this PSP & CBD Awareness Week Communications Help #FixCHC this PSP & CBD Awareness Week Today marks the first day of PSP & CBD Awareness 2025! Continuing our commitment to…PSPA Admin23rd June 2025
Research helps to distinguish PSP from Parkinson’s CommunicationsResearch Research helps to distinguish PSP from Parkinson’s A recent study led by Dr Ed Jabbari and part funded by PSPA, has shown…PSPA Admin20th June 2025
PSPA Podcast, Episode 2: understanding support and care CommunicationsInformation & Support PSPA Podcast, Episode 2: understanding support and care Episode 2 of series 3 of the PSPA Podcast has hit the airwaves! In this…PSPA Admin16th June 2025
Take part in research from home CommunicationsResearch Take part in research from home Researchers at Durham University are looking into how people with Progressive Supranuclear Palsy (PSP) and…PSPA Admin13th June 2025
Register for our Research Information Session CommunicationsResearch Register for our Research Information Session We are pleased to be hosting our third Research Information Session of 2025 on Thursday,…PSPA Admin11th June 2025
2025 Impact Report: How you helped to make 30 years matter Communications 2025 Impact Report: How you helped to make 30 years matter We have published our 2024 Impact Report, highlighting achievements you helped us to reach during…PSPA Admin4th June 2025
Thank you to our volunteers CommunicationsVolunteering Thank you to our volunteers During National Volunteers' Week we want to extend a massive 'thank you' to all of…PSPA Admin2nd June 2025
Watch our Brand New It Could Be CBD Animation BlogInformation & Support Watch our Brand New It Could Be CBD Animation We know how important spotting the early signs of PSP & CBD are as this…Colleen Wren20th May 2025
Understood: An appeal to raise £2 million for PSP & CBD Research BlogFundraisingResearch Understood: An appeal to raise £2 million for PSP & CBD Research We are launching our biggest appeal yet to raise £2 million to fund life-changing research…Colleen Wren1st May 2025
New funding released to help progress research CommunicationsResearch New funding released to help progress research Today we are excited to be releasing new funding to help progress research into PSP…PSPA Admin24th April 2025
PSPA Awareness Event in Gloucester BlogCommunicationsInformation & Support PSPA Awareness Event in Gloucester We held our first FREE Regional Awareness event to Gloucester in Wednesday, 30 April 2025.…Colleen Wren10th April 2025
Research finds length of gene not linked to PSP or CBD CommunicationsResearch Research finds length of gene not linked to PSP or CBD Recent research has found there is no link between genetic variations (repeat expansions) of C9orf72…PSPA Admin10th April 2025
Small Research Grant funding confirmed for five studies CommunicationsResearch Small Research Grant funding confirmed for five studies We are pleased to confirm funding has been agreed for five new research studies under…PSPA Admin31st March 2025
Become a Support Group Helper! Volunteering Become a Support Group Helper! We're looking for two new Support Group Helpers for our in-person Devon & Cornwall groups and…Colleen Wren28th March 2025
It’s Brain Awareness Week! Blog It’s Brain Awareness Week! The Annual Brain Awareness Week is running from 10-16 March. PSPA has joined the four…Colleen Wren11th March 2025