Blog Archives - PSPA

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Blog Communications Information & Support

What does the Budget mean for people living with PSP & CBD?

The Government’s 2025 Budget was an important moment to address the challenges faced by people…

Pooja Pandya10th December 2025

Blog Communications Information & Support

PSPA Helpline – Festive Holiday Opening Hours

We understand the festive season can bring joy and challenges for different people, and we…

Pooja Pandya5th December 2025

Blog Communications Research

Call for Personal Essays on Dementia-related Experiences

The Nature Partner Journals Dementia (NPJ) are looking for essays and perspectives from patients, caregivers,…

Colleen Wren2nd December 2025

Jon Garrard BBC Radio 4 Appeal Presenter

Blog Communications Fundraising Information & Support

PSPA’s BBC Radio 4 Appeal Update – A Big Thanks to All Our Supporters

We are thrilled to share that your generosity and support for our BBC Radio 4…

Pooja Pandya28th November 2025

brain diagram_CBD

Blog Communications Information & Support

Corticobasal Degeneration (CBD) Vs Corticobasal Syndrome (CBS) – Understanding the Difference

Corticobasal Degeneration (CBD) is a rare, progressive neurological condition that causes problems with movement, speech,…

Pooja Pandya24th November 2025

Blog Communications Fundraising

How You Can Make a Difference With Your Festive Purchases

The festive season is nearly upon us. So, here’s your chance to spread joy and…

Pooja Pandya19th November 2025

Blog Communications Fundraising

Our Bauble Appeal Is Live – Dedicate A Bauble For Your Loved One Today

The festive season can feel less bright when a loved one has been diagnosed with…

Pooja Pandya5th November 2025

Blog Communications Information & Support Research

Ferrer Has Completed Patient Recruitment for PROSPER Study

Spanish pharmaceutical company, Ferrer, have announced they have completed recruitment of 220 patients for the…

Colleen Wren22nd October 2025

Blog Communications Fundraising Research

Listen to Jon Garrard’s Story on BBC Radio 4 – Support PSPA’s Appeal Today

Our BBC Radio 4 Appeal is now live! Thank you to everyone who tuned into…

Colleen Wren19th October 2025

Blog Communications Information & Support

PSP & CBD Guide Now Available to Download in Multiple Languages

Whether you are living with PSP or CBD, or care for someone who has been…

Pooja Pandya10th October 2025

Blog Communications Information & Support

PSPA Announce New CEO

We are delighted to announce that Dr James Cusack will become the new CEO of…

Colleen Wren23rd September 2025

Blog Communications Information & Support

Read the Brand New Edition of PSPA Matters

The brand new edition of PSPA Matters is now available to read! We have another…

Colleen Wren12th September 2025

Kristy Robinson

Blog

New Portsmouth Support Group Starting in August

We are excited that a brand new Support Group will be starting in Portsmouth on…

Colleen Wren20th August 2025

Blog Information & Support Research

Programme Grants for Applied Research (PGfAR) are Launching Soon

The National Institute for Health and Care Research (NIHR) is opening its Programme Grants for…

Colleen Wren15th July 2025

It could be CBD

Blog Information & Support

Watch our Brand New It Could Be CBD Animation

We know how important spotting the early signs of PSP & CBD are as this…

Colleen Wren20th May 2025

Blog Fundraising Research

Understood: An appeal to raise £2 million for PSP & CBD Research

We are launching our biggest appeal yet to raise £2 million to fund life-changing research…

Colleen Wren1st May 2025

Blog Communications Information & Support

PSPA Awareness Event in Gloucester

We held our first FREE Regional Awareness event to Gloucester in Wednesday, 30 April 2025.…

Colleen Wren10th April 2025

Brain Awareness Week

Blog

It’s Brain Awareness Week!

The Annual Brain Awareness Week is running from 10-16 March. PSPA has joined the four…

Colleen Wren11th March 2025

Someone using Facebook

Blog Communications Volunteering

Volunteer to Help Create a Better Future

Would you like to help a create a better future for people living with PSP…

Colleen Wren6th February 2025

Blog Communications Fundraising Information & Support

PSPA’s Impact in 2023

2023 was a busy year for PSPA. A year of growth and investment which saw…

PSPA Admin20th June 2024