Call for Personal Essays on Dementia-related Experiences BlogCommunicationsResearch Call for Personal Essays on Dementia-related Experiences The Nature Partner Journals Dementia (NPJ) are looking for essays and perspectives from patients, caregivers,…Colleen Wren2nd December 2025
Ferrer Has Completed Patient Recruitment for PROSPER Study BlogCommunicationsInformation & SupportResearch Ferrer Has Completed Patient Recruitment for PROSPER Study Spanish pharmaceutical company, Ferrer, have announced they have completed recruitment of 220 patients for the…Colleen Wren22nd October 2025
Amylyx Pharmaceuticals discontinue clinical trial for PSP CommunicationsResearch Amylyx Pharmaceuticals discontinue clinical trial for PSP This week, Amylyx Pharmaceuticals has made the decision to discontinue their Orion trial of AMX0035…PSPA Admin28th August 2025
Research helps to distinguish PSP from Parkinson’s CommunicationsResearch Research helps to distinguish PSP from Parkinson’s A recent study led by Dr Ed Jabbari and part funded by PSPA, has shown…PSPA Admin20th June 2025
New funding released to help progress research CommunicationsResearch New funding released to help progress research Today we are excited to be releasing new funding to help progress research into PSP…PSPA Admin24th April 2025
Research finds length of gene not linked to PSP or CBD CommunicationsResearch Research finds length of gene not linked to PSP or CBD Recent research has found there is no link between genetic variations (repeat expansions) of C9orf72…PSPA Admin10th April 2025
Small Research Grant funding confirmed for five studies CommunicationsResearch Small Research Grant funding confirmed for five studies We are pleased to confirm funding has been agreed for five new research studies under…PSPA Admin31st March 2025
Research into diagnostic test celebrated International Conference CommunicationsResearch Research into diagnostic test celebrated International Conference Research to help establish a novel diagnostic test for PSP has been celebrated at the…PSPA Admin3rd October 2024
Ferrer advances research into PSP CommunicationsResearch Ferrer advances research into PSP We are excited to learn Ferrer has advanced their research into PSP with a phase…PSPA Admin1st October 2024
SMALL RESEARCH PROJECTS YOU HELPED TO FUND CommunicationsResearch SMALL RESEARCH PROJECTS YOU HELPED TO FUND Thanks to your ongoing support, PSPA was able to fund three Small Research Grants during…PSPA Admin27th September 2024
Applications for Small Research Grants are now open! CommunicationsResearch Applications for Small Research Grants are now open! We are pleased to be opening applications for our Small Research Grant again this September. …PSPA Admin23rd September 2024
An update on the Amylyx Orion clinical trial CommunicationsResearch An update on the Amylyx Orion clinical trial Last week, Amylyx published news about their Orion clinical trial which was due to introduce…PSPA Admin23rd April 2024
First participant dosed in the Amylyx trial BlogResearch First participant dosed in the Amylyx trial The first participant in the Amylyx stage three trial began receiving doses before Christmas! The…PSPA Admin23rd January 2024
SPECIAL EDITION PSPA MATTERS NOW AVAILABLE! CommunicationsInformation & Support SPECIAL EDITION PSPA MATTERS NOW AVAILABLE! On 19 and 20 October, PSPA joined forces with CurePSP in London to host the…PSPA Admin21st December 2023
HRH The Duchess of Gloucester attends Neuro 2023 Sympsoium CommunicationsResearch HRH The Duchess of Gloucester attends Neuro 2023 Sympsoium We were proud to welcome Her Royal Highness The Duchess of Gloucester GCV to the…PSPA Admin26th October 2023
Government investment into rare disease research to aid PSP & CBD Research Government investment into rare disease research to aid PSP & CBD This week, The National Institute for Health and Care Research has announced an amazing £14…PSPA Admin6th July 2023
Save the date for the Neuro 2023 Symposium Research Save the date for the Neuro 2023 Symposium This October we are teaming up with CurePSP in the USA to host the Neuro…PSPA Admin12th June 2023
Small Research Grants update! BlogCommunications Small Research Grants update! Thanks to the kind donations of our supporters, who raised more than £10,000 in our…PSPA Admin2nd February 2023
Updated PSPA research leaflet now available Information & SupportResearch Updated PSPA research leaflet now available Our leaflet, presenting current understanding of PSP & CBD causes and reviewing current research has…PSPA Admin24th November 2022
ABN Fellowship now available Blog ABN Fellowship now available Learn more about the two to three year PSPA funded Fellowship.PSPA Admin19th July 2022