Information & Support Archives - PSPA

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Ferrer Has Completed Patient Recruitment for PROSPER Study

Spanish pharmaceutical company, Ferrer, have announced they have completed recruitment of 220 patients for the…

Colleen Wren22nd October 2025

Blog Communications Information & Support

PSP & CBD Guide Now Available to Download in Multiple Languages

Whether you are living with PSP or CBD, or care for someone who has been…

Pooja Pandya10th October 2025

Communications Information & Support Research

Save the Date for Neuro 2026!

PSPA and CurePSP will be partnering again next November to bring the Neuro 2026 Symposium,…

Colleen Wren25th September 2025

Blog Communications Information & Support

PSPA Announce New CEO

We are delighted to announce that Dr James Cusack will become the new CEO of…

Colleen Wren23rd September 2025

Communications Information & Support

Listen to PSPA on the New Episode of the Movers and Shakers Podcast

PSPA’s CEO Rebecca Packwood, and supporter Lisa Rodrigues who lives with CBD, were delighted to…

Colleen Wren20th September 2025

Blog Communications Information & Support

Read the Brand New Edition of PSPA Matters

The brand new edition of PSPA Matters is now available to read! We have another…

Colleen Wren12th September 2025

Communications Information & Support Research

Watch our Research Information Day 2 Recordings

We were delighted to hold our second Research Information Day of the year on Thursday…

Colleen Wren28th August 2025

Communications Information & Support

New Masterclass: Falls and Mobility Management in PSP & CBD

Are you a healthcare professional seeking to enhance your expertise in managing falls and mobility…

PSPA Admin7th August 2025

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Communications Information & Support Research

Make your Voice Heard in our Patient Survey

We have now launched our 2025 Patient Survey. Everything we do at PSPA is shaped…

Colleen Wren28th July 2025

Blog Information & Support Research

Programme Grants for Applied Research (PGfAR) are Launching Soon

The National Institute for Health and Care Research (NIHR) is opening its Programme Grants for…

Colleen Wren15th July 2025

Communications Information & Support

PSPA Podcast, Episode 2: understanding support and care

Episode 2 of series 3 of the PSPA Podcast has hit the airwaves! In this…

PSPA Admin16th June 2025

It could be CBD

Blog Information & Support

Watch our Brand New It Could Be CBD Animation

We know how important spotting the early signs of PSP & CBD are as this…

Colleen Wren20th May 2025

Blog Communications Information & Support

PSPA Awareness Event in Gloucester

We held our first FREE Regional Awareness event to Gloucester in Wednesday, 30 April 2025.…

Colleen Wren10th April 2025

Communications Information & Support

Series Three of the PSPA Podcast

The third series of the PSPA Podcast has hit the airwaves this February. In the…

PSPA Admin27th February 2025

A carer helping someone with an activity

Communications Information & Support

New Carers Support Groups

We are excited to announce that we are launching two brand new carers groups this…

Colleen Wren2nd January 2025

Communications Information & Support

PSPA Christmas Opening Times

As we come towards the end of the year, we want to keep you up-to-date…

PSPA Admin16th December 2024

A healthcare worker chatting to a lady

Information & Support

Support understanding Winter Fuel Payments

The Winter Fuel Payment is an annual payment to help with heating costs during the…

PSPA Admin11th October 2024

Communications Information & Support

Information for young people launched

This International Youth Day we are proud to launch our information for young people. The…

PSPA Admin12th August 2024

Communications Information & Support

Share your experience of PSP & CBD in #MyNeuroSurvey

Today, as members of the Neurological Alliance, PSPA are supporting the launch of #MyNeuroSurvey. Everyone…

PSPA Admin22nd July 2024

Blog Communications Fundraising Information & Support

PSPA’s Impact in 2023

2023 was a busy year for PSPA. A year of growth and investment which saw…

PSPA Admin20th June 2024