Research Neuro 2023 Symposium – Call for Abstracts! We are pleased to be inviting abstracts for our Neuro 2023 Symposium poster competition. All…PSPA Admin10th July 2023
Research Government investment into rare disease research to aid PSP & CBD This week, The National Institute for Health and Care Research has announced an amazing £14…PSPA Admin6th July 2023
CommunicationsFundraising Raise awareness with our #BeAware Raffle Today (30 June) we are excited to be launching our #BeAware Raffle! The purpose of…PSPA Admin30th June 2023
CommunicationsInformation & Support How you can apply for a PSPA Awareness Grant This PSP & CBD Awareness Week, we are pleased to be launching our new PSP…PSPA Admin19th June 2023
CommunicationsInformation & Support Help opticians look out for PSP This PSP & CBD Awareness Week we are launching a new Red Flag poster. Our…PSPA Admin18th June 2023
CommunicationsInformation & Support PSPA publish a PSP & CBD State of Diagnosis report PSPA has published a State of Diagnosis report today, following feedback received from our 2022…PSPA Admin17th June 2023
Research Save the date for the Neuro 2023 Symposium This October we are teaming up with CurePSP in the USA to host the Neuro…PSPA Admin12th June 2023
Information & Support Carers Guide now available As part of our activity for Carers Week, we are pleased to be launching a…PSPA Admin5th June 2023
Research Recordings of PSPA Research Information Day Our 2023 Research Information Day was enjoyed by more than 200 online attendees on Friday…PSPA Admin25th May 2023
BlogCommunicationsFundraising Andrew’s Walk for Lindsay Andrew Coney from Clitheroe, Lancashire, is stepping up awareness in his local area with a…PSPA Admin25th May 2023
CommunicationsInformation & Support PSPA Survey shows 60% of people living with PSP & CBD are initially misdiagnosed The PSPA survey of people living with PSP & CBD highlights diagnosis of the condition…PSPA Admin11th April 2023
CommunicationsFundraising Rob’s epic drive to raise awareness of PSP PSPA supporter Rob Hutchings will be beginning an epic drive from John O'Groats to Lands…PSPA Admin3rd April 2023
CommunicationsInformation & Support ‘Ask the experts’ webinars for healthcare professionals We are pleased to have developed a series of 'Ask the expert' webinars with members…PSPA Admin28th March 2023
Research Study looking into lived experiences of PSP This week the findings of a study looking into the lived experience of people living…PSPA Admin1st December 2022
Information & SupportResearch Updated PSPA research leaflet now available Our leaflet, presenting current understanding of PSP & CBD causes and reviewing current research has…PSPA Admin24th November 2022
Information & Support Questions wanted for ‘Ask the Expert’ event PSPA is producing an ‘Ask the Expert’ webinar supported by the multidisciplinary team (MDT) from…PSPA Admin15th November 2022
Blog Big Band Concert for PSPA PSPA supporter Marylyn Dodwell-Lees from St Neots and Phil Hammond from Bedford have organised the…PSPA Admin14th November 2022
CommunicationsInformation & Support Ed’s Lace Christmas Tree Challenge The Ed's Lace Christmas Tree Challenge is our festive-themed challenge to continue important awareness-raising of…PSPA Admin10th November 2022
CommunicationsInformation & Support PSPA Matters hitting your doormats this November The latest edition of PSPA Matters will be hitting your doormats this week. As usual,…PSPA Admin1st November 2022
Blog Help cheer #TeamPSPA at the London Marathon 2023! We are currently looking for volunteers to make some noise at next year’s TCS London…PSPA Admin18th October 2022