PSPA’s Healthcare Professionals Hub
Welcome to PSPA’s dedicated resource for healthcare professionals provided by PSPA. This page is designed to support you in delivering care that is coordinated, has continuity and is compassionate. We want to make sure you can provide up-to-date information to your patients diagnosed with PSP (Progressive Supranuclear Palsy) and CBD (Corticobasal Degeneration).
Resources For Professionals
As healthcare professionals on the front lines of managing PSP & CBD, having access to the right tools and information is essential. Our suite of resources is designed to assist you in providing the best possible care for your patients. From detailed guides on symptom management to insights into the latest research, our resources aim to enhance your knowledge and skills in dealing with these complex neurological conditions.
A summary of what’s available:
The PSPA Helpline
Our Helpline is available to all. Professionals can call or make contact for support and information, as well as people living with PSP or CBD and family members. The contact details are:
Telephone: 0300 0110 122
Email: [email protected]
You can also refer people living with PSP & CBD and family members to the Helpline for support.
PSP & CBD Resources
Utilise our symptom management guides, which provide up-to-date information, including medication options, physiotherapy and more.
Educational Sessions and Videos
Enhance your understanding of PSP & CBD, helping you offer patient-centred care with our Masterclasses for Health and Social Care Professionals (HSCPs). We also run recorded useful webinars to aid awareness for HSCPs. Working with the multidisciplinary team from the Atypical Parkinson’s clinic at the Queen Elizabeth University Hospital, Glasgow, we recorded six webinars about PSP & CBD and how PSPA can help.
Research Updates
Working Groups
To help promote the benefits of sharing information and best practices among health and social care professionals, we’ve established a Healthcare Professional Working Group. This quarterly online meeting enables professionals to share ideas and best practices in the care of people living with PSP & CBD. Discover when the next meeting will take place here. To join the group, please email Carol Amirghiasvand
Support in clinics
Enhance your understanding of PSP & CBD, helping you offer patient-centred care with our Masterclasses for Health and Social Care Professionals (HSCPs). We also run recorded useful webinars to aid awareness for HSCPs. Working with the multidisciplinary team from the Atypical Parkinson’s clinic at the Queen Elizabeth University Hospital, Glasgow, we recorded six webinars about PSP & CBD and how PSPA can help.
“I am new to the role of Parkinson’s disease nurse; therefore, all PSPA’s information is invaluable to me.”
Useful Downloadables
For ease of access, we have provided a list of our most useful publications for healthcare professionals below. Free resources can be downloaded below as a PDF or for printing. To request resources in printed format, please get in touch with our Helpline team at [email protected]
General Resources
Role Specific Resources
It Could Be CBD Animation – Learn how you can support people living with CBD
It’s Not Parkinson’s – Learn about how you can support those living with PSP
Sign up to receive training and resource updates by email
Interactive Resources
In 2018, we launched our Interactive Guide. This guide is a world-first and allows you to learn more about PSP & CBD, and the standards of care people living with these conditions should expect to see. In addition, you can use the resource to build tailored guides for yourself, colleagues or your patients and print them off to share.
Each of these resources is crafted to provide you with the most relevant and practical information. By integrating these tools into your practice, you can improve outcomes for your patients with PSP & CBD, ensuring they receive the best care based on the latest available evidence.
Masterclasses and Educational Sessions
As mentioned in the section above, we run quarterly masterclasses to help healthcare professionals develop their knowledge and understanding of PSP & CBD. The Masterclasses will provide a programme of speakers to give an overview as well as focus on specific areas and professions.
Our masterclasses are carefully designed by experts in the field to delve deep into the complexities of these conditions. Each session is aimed at enhancing your understanding, updating you on the latest advancements, and equipping you with practical skills for managing these challenging neurological disorders.
Why Attend?
Expert-Led Training
Each class is led by specialists who are at the forefront of neurological research and patient care. They bring real-world insights and cutting-edge knowledge directly to you.
Up-to-date Clinical Practices
The content is continuously updated to reflect the latest research findings and treatment methodologies, ensuring you’re always at the cutting edge of patient care.
How to Register?
How to Register
Signing up for our masterclasses is straightforward. Visit our website and complete the registration process online.
Schedule
We offer a variety of sessions throughout the year to accommodate busy schedules. Check our Eventbrite page for upcoming sessions across a variety of topics.
Fees
Our masterclasses are free to attend, making them accessible to all to help develop awareness of PSP & CBD.
Upcoming
Fall and Mobility Management in PSP & CBD
Date: Wednesday, 24 September 2025
Time: 6:30pm (BST)
Location: Online via Zoom
Speaker: Jade Donnelly, Specialist Physiotherapist and ACP Coordinator, University Hospital Southampton NHS Foundation Trust.
Can’t Attend our Masterclasses?
Tailored Education Sessions can be organised for you and your team, in-person or online to help increase your knowledge and understanding of PSP & CBD
“Understanding the potential progression of the conditions will help me obtain realistic goals for my patients living with PSP & CBD.”
Support For Your Patients
At PSPA, we understand the challenges faced by patients living with a diagnosis of PSP & CBD, and we are here to help. We offer a range of support services designed to assist your patients and their families in managing their conditions effectively.
Information Packs
Provide your patients with detailed information that contains explanations of PSP & CBD, guidance for managing symptoms, and insights into what patients and their families can expect throughout the progression of the diseases. Download our Personal Guide to PSP & CBD here.
Support Groups
Direct your patients to our support groups, which are invaluable resources for sharing experiences, local information and personal tips to help with coming to terms with a diagnosis. The groups provide emotional and practical support not only to patients but also to caregivers, creating a community of understanding and assistance. Learn more about the different PSPA Support Groups here.
Family Days
In addition to our regional Support Groups, we provide an opportunity for people living with PSP & CBD and their families to get together, build connections and learn more about the support available to them. Find out when the next free regional event is on our dedicated page.
PSPA Support Grants
PSPA support grants aim to help improve the quality of life for people who are living with or are affected by PSP & CBD. With a referral from a Healthcare Professional, our support grants can provide a one-off payment of up to £250 to help provide an item or service, such as mobility aid or counselling sessions. Read more here. The Support Grant application form and guidance can be downloaded by clicking the link.
PSPA Helpline
As well as supporting you as a professional working in the field of PSP & CBD, our Helpline is also here to help your patients and their families. We can help them navigate the complexities of healthcare systems, including assistance with accessing treatments, care options, and entitlements. We support patients to ensure they receive the care and support they need. Our PSPA Helpline is available to provide a listening ear for those who need support. This service is free and confidential over the phone and by email.
Online Exercise Sessions
PSPA is excited to be working in collaboration with Neuro Heroes to deliver regular Online Exercise Classes as part of our Mind, Body, Soul project. Neuro Heroes is an online Neuro gym, providing live exercise sessions over Zoom run by Specialist Neuro Physiotherapists. Neuro Heroes offer one CBD class and one PSP class a week for anyone who loves either of the conditions and is registered with PSPA. Find out more here.
Talk to our Helpline Care Navigator about a particular challenge or arrange a Education Session to help you and your team learn more about the conditions.
At PSPA, we understand that each patient experiences their condition in a unique way. By referring your patients to PSPA, you open the door to a wealth of specialised support that is carefully tailored to meet their individual needs.
Plus, when you refer your patients to us, they’re never alone on their journey. They’ll be part of a warm and welcoming community backed by professionals and volunteers committed to helping them navigate every challenge. This kind of support can make a real difference in how they manage their condition, enhancing their overall wellbeing and leading to a happier, healthier life.
