Research Archives

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Listen to Jon Garrard’s Story on BBC Radio 4 – Support PSPA’s Appeal Today

Our BBC Radio 4 Appeal is now live! Thank you to everyone who tuned into…

Colleen Wren19th October 2025

Communications Information & Support Research

Save the Date for Neuro 2026!

PSPA and CurePSP will be partnering again next November to bring the Neuro 2026 Symposium,…

Colleen Wren25th September 2025

Communications Information & Support Research

Watch our Research Information Day 2 Recordings

We were delighted to hold our second Research Information Day of the year on Thursday…

Colleen Wren28th August 2025

Communications Research

Amylyx Pharmaceuticals discontinue clinical trial for PSP

This week, Amylyx Pharmaceuticals has made the decision to discontinue their Orion trial of AMX0035…

PSPA Admin28th August 2025

Communications Information & Support Research

Make your Voice Heard in our Patient Survey

We have now launched our 2025 Patient Survey. Everything we do at PSPA is shaped…

Colleen Wren28th July 2025

Blog Information & Support Research

Programme Grants for Applied Research (PGfAR) are Launching Soon

The National Institute for Health and Care Research (NIHR) is opening its Programme Grants for…

Colleen Wren15th July 2025

Dr Ed Jabbari working in a research lab.

Communications Research

Research helps to distinguish PSP from Parkinson’s

A recent study led by Dr Ed Jabbari and part funded by PSPA, has shown…

PSPA Admin20th June 2025

Communications Research

Take part in research from home

Researchers at Durham University are looking into how people with Progressive Supranuclear Palsy (PSP) and…

PSPA Admin13th June 2025

Communications Research

Register for our Research Information Session

We are pleased to be hosting our third Research Information Session of 2025 on Thursday,…

PSPA Admin11th June 2025

Blog Fundraising Research

Understood: An appeal to raise £2 million for PSP & CBD Research

We are launching our biggest appeal yet to raise £2 million to fund life-changing research…

Colleen Wren1st May 2025

Communications Research

New funding released to help progress research

Today we are excited to be releasing new funding to help progress research into PSP…

PSPA Admin24th April 2025

Communications Research

Research finds length of gene not linked to PSP or CBD

Recent research has found there is no link between genetic variations (repeat expansions) of C9orf72…

PSPA Admin10th April 2025

Communications Research

Small Research Grant funding confirmed for five studies

We are pleased to confirm funding has been agreed for five new research studies under…

PSPA Admin31st March 2025

Communications Research

Research into diagnostic test celebrated International Conference

Research to help establish a novel diagnostic test for PSP has been celebrated at the…

PSPA Admin3rd October 2024

Communications Research

Ferrer advances research into PSP

We are excited to learn Ferrer has advanced their research into PSP with a phase…

PSPA Admin1st October 2024

Communications Research

SMALL RESEARCH PROJECTS YOU HELPED TO FUND

Thanks to your ongoing support, PSPA was able to fund three Small Research Grants during…

PSPA Admin27th September 2024

Communications Research

Applications for Small Research Grants are now open!

We are pleased to be opening applications for our Small Research Grant again this September. …

PSPA Admin23rd September 2024

Communications Research

An update on the Amylyx Orion clinical trial

Last week, Amylyx published news about their Orion clinical trial which was due to introduce…

PSPA Admin23rd April 2024

Communications Information & Support Research

Sign up to attend our Research Information Session

PSPA is excited to announce the first of our online Research Information Sessions for 2024.…

PSPA Admin16th April 2024

Blog Research

First participant dosed in the Amylyx trial

The first participant in the Amylyx stage three trial began receiving doses before Christmas! The…

PSPA Admin23rd January 2024

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PSPA is the only UK charity dedicated to creating a better future for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We work to ensure the 10,000 people living with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate. We rely entirely on voluntary donations. PSPA is a registered charity in England and Wales (1037087) and in Scotland (SC041199).