Observational Study
Researchers at the University of Sheffield are asking people with PSP to help them develop better tools to measure movement and walking. This study will explore whether wearable sensor devices can be used to measure people’s mobility during their daily life. The team think that this kind of tool could help to monitor real-world mobility changes and help people with PSP to self-manage their care. The team are looking for volunteers who live in Yorkshire who have a diagnosis of PSP who are able to walk (with or without a walking aid). There is support with participants travel expenses to help them to take part.
To take part you would attend a single visit to the Movement Analysis Laboratory at The Advanced Wellbeing Research Centre in Sheffield. You will be asked to complete some questionnaires about your health and quality of life and perform some short walking tests. You’ll then be asked to use wearable sensors at home while you go about your daily life.
You can read more on the patient sheet and complete the form to sign-up.
Workshop
Researchers are also interested in how people with long term neurological conditions see digital technologies playing a role in health care and their lives and what might be barriers to this. They are planning a workshop for people with a lived experience of PSP including both people with a diagnosis along with a trusted family/friend/carer, to gather a wide range of opinions from people with a diverse experience and backgrounds.
The workshop may be held in-person at the Advanced Wellbeing Research Centre, Sheffield, S9 3TU, but it will also be possible to join online remotely. It will take two hours, but there will be comfort breaks and refreshments, for people attending in-person. There is support with participants’ travel expenses as well as vouchers worth £25 per hour for people who take part.
If you’re interested in attending, please read the information sheet or contact Dr Ellen Buckley on sth.mostract@nhs.net or 0114 222 1899.
