Today marks the first day of PSP & CBD Awareness 2025!
Continuing our commitment to creating a better future for everyone affected for PSP & CBD, this year we are focusing on improving peoples’ experiences of NHS Continuing Healthcare Funding.
To this we are calling on the Government to #FixCHC so that it works for everybody living with PSP & CBD by:
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- Improving assessments for CHC so they take account of progressive conditions like PSP & CBD and listen to the experience of family carers
- Providing better training for healthcare professionals who undertake assessments for CHC
- Ensuring that somebody with knowledge of a person’s condition is part of their CHC assessment
- Fixing the postcode lotteries that see people with very similar needs given different support depending only on where they live
- Fully funding CHC so nobody misses out because of financial pressures in our NHS.
You can help call the Government to #FixCHC by writing to local MP in England and Wales. This will help inform your MP of the problems in CHC and gives an opportunity to ask them to back our calls for change.
To help you contact your MP, you can search for their contact details via our website and download a template email, which you can personalise with your experiences.
