Life can be challenging for people living with rare neurodegenerative diseases like Progressive Supranuclear Palsy and Corticobasal Degeneration. Not just physically, but also emotionally and socially. At PSPA, we often see people and families with PSP & CBD struggle with isolation and loneliness. However, having someone to talk to who understands what you are going through can make a real difference. And we provide this kind of support through our Befriending volunteer service. No matter where someone is in their journey with Progressive Supranuclear Palsy or Corticobasal Degeneration, our volunteers can offer the companionship, connection, and emotional one-to-one support they need to navigate their diagnosis.
What does it mean to be a Befriending volunteer
Becoming a Befriending volunteer can be a rewarding experience, and you can make a real impact on the lives of people affected by PSP & CBD. You will get a chance to develop important skills, be a part of a valued team, and help families in your local area. And the best part, you can do it around your family, studies or other commitments. You can make a great PSPA Befriending volunteer if:
- You are empathetic, reliable, and supportive.
- You have excellent communication and listening skills.
- You understand how to deal with sensitive and confidential information.
- You have basic admin skills, computer literacy, and can travel within your local area.
“Seeing my volunteer regularly has really helped. I am sleeping better now and talk to the staff in the care home more. Her visits have been unbelievable, and the support has helped more than words can say.” – Befriending Beneficiary
Living with PSP & CBD can put a strain on relationships, and people’s mental health and having someone to talk to about their worries can really help. As a Befriending Volunteer, you’ll offer companionship, understanding, and a listening ear to those who need it most. Your time and compassion can make a real difference to people who may be feeling isolated, adjusting to a new diagnosis, or going through a crisis.
You will be required to commit to supporting an individual or family at least once a fortnight for a minimum of 12 weeks, and up to a year. Training will be provided, and you will also have access to all PSPA publications and resources, so you can signpost to other organisations and services.
What will you do
As a Befriending volunteer, you will:
- Provide 1:1 home visits to individuals with PSP & CBD and/or their carers, who are experiencing a time of crisis, are newly diagnosed, or are feeling isolated. Befriending can also be carried out over Zoom or via the phone.
- Offer emotional support, company, and a listening ear. Be a “Companion through the journey”.
- Explain the range of support and services that PSPA can offer.
- Help families access appropriate health and social care services by signposting to the Helpline.
- Keep accurate and relevant records in accordance with PSPA’s guidelines.
- Attend regular training and development events.
- Provide support on a weekly to monthly basis, depending on the needs of the individual and volunteer availability.
“One cannot underestimate the relief the carer & person living with PSP/CBD can feel speaking with someone who has been on a similar journey.” – David, Current Volunteer.
PSPA is currently looking for Befriending volunteers in Edinburgh, Glasgow, Leeds, Nottingham, Staffordshire, Birmingham, Leicestershire, Bristol, Somerset, Dorset, Devon, and Cornwall.
If you think you have what it takes to become a compassionate Befriending volunteer, and are interested in making a difference through volunteering, please give us a call on 01327 362461 or email us at volunteering@pspassociation.org.uk.
