A diagnosis of PSP or CBD can turn your life upside down. You are bound to have lots of questions and need time to get your head around how your life might change and what it all means. Whether you have been diagnosed yourself, are caring for a loved one with PSP or CBD, or are supporting a friend, it’s normal to feel overwhelmed and uncertain.
We just want you to know, you are not alone.
Whatever support you need, whether it’s in person, over the phone, connecting with other people through dedicated CBD & PSP Support Groups or reading information, we’re here for you
From information to aid your understanding of the condition, to help navigate local services and support for your daily life, PSPA can provide the right CBD & PSP support to reduce uncertainty and improve your quality of life
Our free, confidential support services are for everyone affected by PSP & CBD across the UK. Our Helpline team understands the challenges associated with these conditions and is here to listen, offer practical information and help you find appropriate PSP & CBD support and resources at the right time.
Keep reading to learn more about our range of support services and information.
INFORMATION AND SUPPORT
The PSPA Helpline is a great first port of call following a diagnosis of PSP & CBD, providing someone for you to talk to, signposting you to information, and helping you understand the support available to you.
CONNECTING WITH OTHERS
Being diagnosed with a little-known condition can feel isolating. But attending our regional PSP & CBD Support Groups can make a huge difference. Although PSP & CBD can progress in very individual ways, connecting with others living similar experiences can help you feel less alone.
SUPPORTING DAILY LIFE
The progression of PSP & CBD can vary from person to person. But our friendly Helpline Care Navigator team is trained to provide the best support and information for you to manage your symptoms and live the best life possible with the conditions, no matter how they progress.
Whatever stage you are at, PSPA is here to help you feel supported, informed and connected throughout your journey.
CONTACT US
If you would like to speak to someone about living with PSP or CBD, find out more about the support available to you, or attend a Progressive Supranuclear Palsy and Corticobasal Degeneration Support Group, please get in touch using the details below.
Telephone: 0300 0110 122
Frequently Asked Questions
What Support Services does PSPA offer?
PSPA offers a range of Support Services for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD), their carers, family members and any healthcare professionals involved in their care. They include the Helpline, regional Support Groups, downloadable resources, Support Grants, Voice Banking, and Befriending Volunteer Service, among others.
Who can access PSPA's Support Services?
Anyone affected by PSP or CBD in the UK can access PSPA’s Support Services.
How can I contact PSPA’s Helpline for CBD or PSP Support?
You can contact the PSPA Helpline by calling 0300 0110 122 or sending an email to helpline@pspassociation.org.uk. The Helpline offers emotional support, practical information and signposting to relevant services and resources.
Does PSPA offer Support Services for carers and family members?
Yes, PSPA offers Support Services for everyone impacted by PSP & CBD, including their carers, family members, as well as healthcare professionals.
What kind of CBD & PSP Support Groups does PSPA organise?
PSPA hosts online and in-person Support Groups in multiple regions in England, Scotland, and Wales. You can visit our Support Network page to learn more about our regional Support Groups.
What kind of Support Grants does PSPA offer?
PSPA offers financial assistance in the form of Support Grants of up to £300 each year to help with costs related to living with PSP or CBD, such as equipment or specialist support. Applications are assessed on an individual basis. The Helpline team can guide you through the process and eligibility requirements.
