Life with PSP & CBD can throw up different challenges from time to time.
From fully understanding your diagnosis, to understanding what support is available to your in your area, or planning for any adaptations you might need for your home. It can be a lot to process and difficult to know where you can access help.
Our Befriending Volunteer Service aims to reduce isolation and provide much needed emotional support, as you come to terms with how your life could change, and face different changes and challenges along the way.
Support is provided on a one-to-one basis or for a family by our trained Befriending Volunteers.
Befrienders provide long term emotional support and information to people living with PSP & CBD, their carers and family members. If an individual or couple are struggling with a new diagnosis, going through a time of crisis or are isolated, we aim match you with a local volunteer who will visit you at home for up to a year, and be a companion through the journey. They can also help you access further services via the Helpline.
Who can access the Service?
If you are:
- Isolated or living alone
- Struggling with a new diagnosis
- Going through a time of crisis
How can a Befriending Volunteer Help?
- Provide emotional support, a listening ear and are a companion through the journey to families effected by PSP & CBD. They aim to help improve wellbeing during a challenging time, and company if isolated.
- Provide information on PSPA services and read information sheets together.
- Signpost individuals to the Helpline for any referrals and advice on topics such as benefits, Support Grants, CHC funding.
Other Information:
- Support can take place on a weekly to monthly basis depending on the needs of the individual and volunteer availability.
- Support can last from 4 months up to a year depending on circumstances and will be reviewed regularly.
- Visits are preferable, but Befriending can be conducted over Zoom or the phone if there is not a volunteer in your area.
CONTACT US
You can self-refer to receive support from our Befriending Volunteer Service by calling our Helpline:
Telephone: 0300 0110 122
Email: [email protected].
Referrals can also be made by health and social care professionals.
Please note that we have a limited number of volunteers in specific areas, but we are working to expand the service. If none are available in your area, the Helpline team will be happy to discuss alternative support options.
Areas currently with Volunteers: Co Durham, Newcastle, Bedfordshire, Hertfordshire, London, Hampshire, Berkshire, Buckinghamshire, Cambridgeshire, Scotland, Wales, Folkestone and Seven Oaks.
