London Support Group
The London Support Group is run by PSPA volunteer, Rosie Anderson.
The group meets on online on a monthly basis to provide support to local people living with PSP, CBD, their families and carers. It is a place to meet and give mutual support to each other as well as having the opportunity to chat informally and make new friends.
Upcoming meeting dates
Venue and Accessibility
Accessibility Features
Support Group Coordinator
FAQs
How do I get the Zoom details for the meeting?
If you would like to join the London Support Group meetings, please email [email protected]. Once you have registered your interest in the group, you will be added to the invite list. The Zoom invite details are then sent to all group members a couple of days before the meeting is due to take place.
Can my family/carer attend the Support Group meeting with me?
Yes! Support Group meetings welcome people living with PSP & CBD and also their family members, friends and carers.
Do we have to attend the whole meeting?
One of the main benefits of online Support Group meetings is flexibility! Feel free to join or leave the meeting as and when you need to. If you intent to return after a break, please let the Support Group Coordinator know can they can readmit you to the meeting.
MY PERSONAL GUIDE
To help you understand how PSP & CBD may impact you and your family, we have produced a handy guide to the conditions.
As well as information about the conditions, you will find details to help you get to grips with the changes in your symptoms and plan ahead.
LINK VOLUNTEER SERVICE
If you would like one-to-one support to help you come to terms with your diagnosis, or tackle a particular challenge, our Link Volunteer Service can help.
As part of the service, you will be linked with a trained PSPA Volunteer in your area who can provide support and information in-person or over the phone.
PSPA is the only UK charity dedicated to creating a better future for people living with Progressive Supranuclear Palsy (PSP) and Corticobasal Degeneration (CBD). We work to ensure the 10,000 people living with PSP or CBD receive support and care that is co-ordinated, has continuity and is compassionate. We rely entirely on voluntary donations. PSPA is a registered charity in England and Wales (1037087) and in Scotland (SC041199).
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